Breast Cancer Network Australia: Difference between revisions
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{{Short description|Australian non-profit organisation}} |
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{{Promotional|date=November 2024}} |
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{{Use dmy dates|date=November 2016}} |
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{{Use Australian English|date=November 2016}} |
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{{Infobox organization |
{{Infobox organization |
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| name = Breast Cancer Network Australia |
| name = Breast Cancer Network Australia |
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| image = File:BCNA Logo.jpg |
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| alt = Corporate logo of pink woman in outline |
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| caption = BCNA logo |
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| abbreviation = BCNA |
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| alt = Breast Cancer Network Australia's logo |
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| motto = A better journey for all Australians affected by breast cancer |
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| merged = |
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| established = 1998<!-- or: | established = --> <!--e.g. use {{start date and age|df=yes|YYYY|MM|DD}}--> |
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| formation = 1998 |
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| founder = [[Lyn Swinburne]] |
| founder = [[Lyn Swinburne]]<!-- or: | founders = --> |
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| status = charity<!-- Organization's legal status and/or description (company, charity, foundation, etc) --> |
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| purpose = Support for Australians affected by breast cancer<!-- or: | focus = --> <!--(humanitarian, activism, peacekeeping, etc)--> |
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| location = Australia |
| location = Melbourne, Australia |
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| region = <!-- or: | region_served = --> <!--Any particular region or regions associated with or served by the organization--> |
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| leader_title = CEO<!-- defaults to "Leader" --> |
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| leader_name = [[Kirsten Pilatti]] |
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| leader_title = CEO |
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| leader_name = Christine Nolan |
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| website = {{URL|https://www.bcna.org.au/}} |
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| website = http://www.bcna.org.au |
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'''Breast Cancer Network Australia (BCNA)''' is a [[not-for-profit]] organisation that supports [[Australians]] affected by [[breast cancer]]. BCNA works to ensure that Australians affected by breast cancer receive the very best support, information, treatment and care appropriate to their individual needs. Its vision is to ensure a better journey for all Australians affected by breast cancer. |
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'''Breast Cancer Network Australia''' ('''BCNA''') is a [[not-for-profit]] organisation that supports [[Australians]] affected by [[breast cancer]].<ref>[http://www.probonoaustralia.com.au/directory/breast-cancer-network-australia-bcna Guide to Giving] {{Webarchive|url=https://web.archive.org/web/20120612035853/http://www.probonoaustralia.com.au/directory/breast-cancer-network-australia-bcna |date=12 June 2012 }}. ''Pro Bono Australia''. (2010).</ref> BCNA aims to ensure that Australians affected by breast cancer receive support, information, treatment and care appropriate to their needs. |
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BCNA is the peak national organisation for Australians affected by breast cancer, and consists of a network of more than 120,000 individual members and 300 Member Groups.[[Breast Cancer Network Australia#cite note-2|[2]]] |
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BCNA is the peak national organisation for Australians affected by breast cancer, and consists of a network of more than 120,000 individual members and 300 Member Groups.<ref>{{cite web|url=https://www.bcna.org.au/about-us/who-we-are/ | title=Who We Are | publisher=Breast Cancer Network Australia | date=2016}}</ref> |
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== History == |
== History == |
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In 1998, [[Lyn Swinburne]] envisaged an organisation that would positively influence the way breast cancer was discussed in the community. Her goal was for people to talk openly about the disease and acknowledge its personal impact.<ref>[http://www.probonoaustralia.com.au/news/2011/11/changemakers-lyn-swinburne Changemakers – Lyn Swinburne]. ''Pro Bono Australia News''. 2011-11-28.</ref> |
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Following a public meeting in every state and territory, |
Following a public meeting in every state and territory, over 300 women came together to discuss issues affecting women with breast cancer. An action plan was developed and the official launch of BCNA took place following this conference, at the inaugural Field of Women, a visual display of breast cancer statistics on the lawns of [[Parliament House, Canberra|Parliament House]] in Canberra.<ref>[http://www.fieldofwomenlive.org.au/index.php?menuID=19 History of the field] {{webarchive |url=https://web.archive.org/web/20120317205242/http://www.fieldofwomenlive.org.au/index.php?menuID=19 |date=17 March 2012 }}. ''Field of Women Live''. (2010).</ref> |
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BCNA's vision is a better journey for all Australians affected by breast cancer. |
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Lyn retired as CEO of BCNA in November 2011.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/our-people/founder-lyn-swinburne/|title=Founder, Lyn Swinburne AM {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> [[Maxine Morand]] was CEO from 2011 until 2014. Since 2015, Christine Nolan has held the position of CEO.<ref>{{Cite web|url=http://www.abc.net.au/radionational/programs/breakfast/terminal-cancer-patients-struggling-to-access/7256980|title=Terminal cancer patients struggling to access superannuation and insurance|date=2016-03-18|website=Radio National|language=en-AU|access-date=2017-08-30}}</ref> |
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BCNA's mission is to ensure that Australians affected by breast cancer receive the very best ''support, information, treatment and care'' appropriate to their individual needs.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/who-we-are/vision-mission-and-values/|title=Vision, mission and values {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2018-11-07|archive-date=7 November 2018|archive-url=https://web.archive.org/web/20181107103950/https://www.bcna.org.au/about-us/who-we-are/vision-mission-and-values/|url-status=dead}}</ref> |
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BCNA continues to support, inform, represent and connect all Australians affected by breast cancer. |
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* ''support:'' support and empower all Australians with a breast cancer diagnosis through services, resources and programs |
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BCNA is one of a number of major breast cancer organisations in Australia. BCNA works cooperatively with the other national organisations including Cancer Australia,[[Breast Cancer Network Australia#cite note-8|[8]]] National Breast Cancer Foundation (NBCF),[[Breast Cancer Network Australia#cite note-9|[9]]] and the McGrath Foundation [[Breast Cancer Network Australia#cite note-10|[10]]]. |
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* ''inform:'' develop and provide high quality information in a range of formats including information that can empower participation in decisions about treatment and care |
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* ''represent:'' advocate on behalf of Australians affected by or at risk of breast cancer and work to set the best possible treatment and care standards |
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* ''connect:'' strive to help Australians affected by breast cancer to feel less alone throughout their treatment and beyond. Connect people through their shared breast cancer experience to build support for individuals, groups and communities |
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Lyn retired as CEO of BCNA in November 2011.<ref>[http://www.probonoaustralia.com.au/news/2011/10/breast-cancer-leader-farewelled Breast Cancer Leader Farewelled]. ''Pro Bono Australia News''. 2011-10-25.</ref> [[Maxine Morand]] served as CEO from November 2011 until December 2014.<ref>[http://thirdsectormagazine.com.au/news/new_appointments_and_departures/063729/ New appointments and departures] {{Webarchive|url=https://web.archive.org/web/20120307190724/http://thirdsectormagazine.com.au/news/new_appointments_and_departures/063729 |date=7 March 2012 }}. ''Third Sector News''. 2011-09-27.</ref><ref>[http://www.heraldsun.com.au/news/more-news/a-job-close-to-former-minister-maxines-heart/story-fn7x8me2-1226341172348 A job close to former minister Maxine Morand’s heart]. ''Herald Sun''. 2012-04-28.</ref> Christine Nolan retired after three years as CEO in February 2018.<ref>{{Cite web|url=https://www.bcna.org.au/news/2018/02/bcna-ceo-christine-nolan-announces-retirement/|title=BCNA CEO Christine Nolan announces retirement|website=www.bcna.org.au|access-date=2018-11-06|archive-date=7 November 2018|archive-url=https://web.archive.org/web/20181107054305/https://www.bcna.org.au/news/2018/02/bcna-ceo-christine-nolan-announces-retirement/|url-status=dead}}</ref> Kirsten Pilatti is currently CEO.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/our-people/ceo-kirsten-pilatti/|title=CEO, Kirsten Pilatti|website=www.bcna.org.au|access-date=2018-11-06}}</ref> |
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== Advocacy == |
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In addition to providing information and support, BCNA advocates for change and improvements in health care to ensure a better journey for all Australians affected by breast cancer. |
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BCNA is one of a number of major breast cancer organisations in Australia. BCNA works cooperatively with the other national organisations including Cancer Australia,<ref>[http://canceraustralia.nbocc.org.au/breast-cancer/about-breast-cancer/breast-cancer-organisations Who’s who in breast cancer] {{webarchive |url=https://web.archive.org/web/20120321123642/http://canceraustralia.nbocc.org.au/breast-cancer/about-breast-cancer/breast-cancer-organisations |date=21 March 2012 }}. ''Cancer Australia''. (2011).</ref> National Breast Cancer Foundation (NBCF),<ref>[http://www.nbcf.org.au/page.asp?category_id=5&page_id=6 Useful Links]. ''National Breast Cancer Foundation''. (2012).</ref> McGrath Foundation <ref>[http://www.mcgrathfoundation.com.au/resources Resources] {{Webarchive|url=https://web.archive.org/web/20120615001409/http://www.mcgrathfoundation.com.au/resources |date=15 June 2012 }}. ''McGrath Foundation''. (2012).</ref> and BreastScreen Australia.<ref>[http://www.cancerscreening.gov.au/internet/screening/publishing.nsf/Content/breastscreen-about About the Program] {{webarchive |url=https://web.archive.org/web/20120622180832/http://www.cancerscreening.gov.au/internet/screening/publishing.nsf/Content/breastscreen-about |date=22 June 2012 }}. ''BreastScreen Australia''. (2012).</ref> |
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BCNA has undertaken many successful national advocacy campaigns on a range of issues that are important to women with breast cancer. The campaigns have resulted in improved treatment, care and support for women with breast cancer. |
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==== '''CDK 4/6 inhibitor drugs for the treatment of metastatic breast cancer''' ==== |
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Throughout 2017, BCNA has been campaigning for the local sale and PBS listing of CDK4/6 inhibitor drugs [[palbociclib]] and [[ribociclib]].<ref>{{Cite news|url=http://www.abc.net.au/news/2017-05-09/breast-cancer-lisa-laird-palbociclib-drug-subsidy-tga-pbs-qld/8508488|title=Cancer sufferer makes monthly pilgrimage to Hong Kong for drug rejected by PBS|date=2017-05-09|work=ABC News|access-date=2017-08-30|language=en-AU}}</ref> Before its campaign, the only options for people with hormone receptor positive [[metastatic breast cancer]] to access these drugs was through a clinical trial or by purchasing them from overseas, at a cost of thousands of dollars a month.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/current-advocacy-issues/palbociclib-petition/|title=Palbociclib petition {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> Since BCNA launched the campaign, palbociclib has been approved for sale in Australia<ref>{{Cite news|url=https://www.medianet.com.au/releases/132347/|title=New breast cancer drug approval just the first step|work=Medianet|access-date=2017-08-30|language=en-US}}</ref>, however without [[Pharmaceutical Benefits Scheme|Pharmceutical Benefits Scheme]] (PBS) listing. BCNA continues to advocate for palbociclib, ribociclib and other CDK4/6 inhibitor drugs to be available in Australia and listed on the PBS. |
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==== '''Early access to superannuation for people living with a terminal illness''' ==== |
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In early 2015, BCNA raised with the Minister for Superannuation its concerns that people living with a terminal illness, including metastatic breast cancer, were having difficulties accessing their lump sum superannuation payout under the terminal illness provisions. A key issue was that they could not apply for their lump sum superannuation until they had a life expectancy of 12 months or less. As a direct result of BCNA’s representations, the Minister amended the legislation to extend the life expectancy provision from 12 to 24 months.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-the-senate-economics-committee-inquiry-into-scrutiny-of-financial-advice/|title=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-the-senate-economics-committee-inquiry-into-scrutiny-of-financial-advice/|website=www.bcna.org.au|access-date=2017-08-30}}</ref> The change took effect from 1 July 2015<ref>{{Cite web|url=http://www.amaranth.org.au/2015/07/19/changes-to-superannuation-entitlements-for-people-who-are-terminally-ill/|title=Changes to superannuation entitlements for people who are terminally ill|date=2015-07-18|website=Amaranth Foundation|access-date=2017-08-30}}</ref> and has allowed Australians living with a terminal illness better access to their lump sum superannuation. |
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==== '''Perjeta and Kadcyla campaigns''' ==== |
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From 2013 to 2015, BCNA advocated for the inclusion on the PBS of two new important, but high cost, drugs for the treatment of HER2-positive metastatic breast cancer.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-pbac-on-kadcyla-and-perjeta/|title=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-pbac-on-kadcyla-and-perjeta/|website=www.bcna.org.au|access-date=2017-08-30}}</ref> In 2014, the [[Pharmaceutical Benefits Advisory Committee]] (PBAC) deferred making a decision on these drugs and BCNA participated in a round table meeting with key stakeholders including the PBAC. [[Pertuzumab|Perjeta]] and [[Trastuzumab emtansine|Kadcyla]] were subsequently listed on the PBS on 1 July 2015.<ref>{{Cite web|url=http://www.health.gov.au/internet/ministers/publishing.nsf/Content/health-mediarel-yr2015-ley083.htm|title=New breast & lung cancer drugs available from today|last=Health|first=Ley, Sussan. Minister for|website=www.health.gov.au|language=en|access-date=2017-08-30}}</ref> |
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==== '''Tykerb campaign''' ==== |
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In late 2007, BCNA worked hard both behind the scenes and publicly advocating for the inclusion of [[Lapatinib|Tykerb]] on the PBS. In January 2008 it was announced that Tykerb would be available through the PBS.<ref>{{Cite web|url=http://www.pbs.gov.au/info/industry/listing/elements/pbac-meetings/psd/2007-11/pbac-psd-lapatinib-nov07|title=Pharmaceutical Benefits Scheme (PBS) {{!}} Lapatinib ditosylate, tablets, 250 mg, Tykerb, November 2007|last=Health|first=Australian Government Department of|website=www.pbs.gov.au|language=en|access-date=2017-08-30}}</ref> However, Tykerb would not be included on the PBS until May 2008, meaning that women who needed the drug during this interim period still had to pay for it. |
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BCNA convinced the company that produces Tykerb, [[GlaxoSmithKline|GlaxoSmithKline (GSK)]], that they should extend their Tykerb patient access program (which allowed women to access the drug at no cost) until May, when the drug became available to women through the PBS.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-pbac-on-kadcyla-and-perjeta/|title=https://www.bcna.org.au/about-us/advocacy/submissions-and-reviews/submission-to-pbac-on-kadcyla-and-perjeta/|website=www.bcna.org.au|access-date=2017-08-30}}</ref> |
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====== '''MRI Screening for young women at high risk''' ====== |
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In 2005 BCNA worked with a group of health experts to develop a submission to the Medical Services Advisory Committee (MSAC) recommending that a [[Medicare (Australia)|Medicare]] rebate be implemented for MRI screening for young women at high risk of breast cancer. |
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After many delays, in 2007 the Minister for Health announced that funding would be provided for the Medicare rebate. However a change in federal government later that year once again resulted in delays. BCNA continued to apply pressure behind the scenes and finally, in February 2009, the rebate came into effect.<ref>{{Cite web|url=http://www.health.gov.au/internet/main/publishing.nsf/Content/mri-breast-services-q-and-a|title=MRI (Magnetic Resonance Imaging) breast services Q&A (questions and answers)|last=Ageing|first=Australian Government Department of Health and|website=www.health.gov.au|language=en|access-date=2017-08-30}}</ref> |
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==== '''Breast prostheses reimbursement program''' ==== |
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Since 2004 BCNA had called for a national, government supported scheme which would allow women with breast cancer to access breast prostheses at minimal cost. BCNA argued for a uniform national program which would provide women with a reasonable subsidy to cover the cost of a prosthesis and which would be simple and easy to use.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/position-statements/breast-prostheses/|title=Position statement: Breast prostheses {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> |
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In 2009, the Minister for Health and Ageing announced that a national scheme would be introduced. |
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The External Breast Prostheses Reimbursement Program allows women to claim the cost of a prosthesis every two years (up to the value of $400 per prosthesis), with all claims made through Medicare.<ref>{{Cite web|url=https://www.humanservices.gov.au/individuals/services/medicare/external-breast-prostheses-reimbursement-program|title=External Breast Prostheses Reimbursement Program - Australian Government Department of Human Services|website=www.humanservices.gov.au|language=en|access-date=2017-08-30}}</ref> |
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===== '''Herceptin campaigns (2001 – 2015)''' ===== |
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In 2001 and again in 2006 BCNA ran successful campaigns to make [[Trastuzumab|Herceptin]] available to women through government subsidies.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/campaigns#herceptin|title=Campaigns {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> In 2012, BCNA advocated for neoadjuvant Herceptin to be included on the Pharmaceutical Benefits Scheme (PBS). In 2015, BCNA advocated for the subcutaneous form of Herceptin (Herceptin SC) to also be added to the PBS. |
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====== '''Metastatic breast cancer Herceptin campaign''' ====== |
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In 2001, Herceptin had been approved for use in Australia for women with HER2-positive metastatic breast cancer, but it was not included on the PBS as it did not meet the cost effectiveness criteria. As a result many women were unable to afford the treatment.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/campaigns|title=Campaigns {{!}} Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> |
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Throughout 2001 BCNA advocated strongly for Herceptin to be subsidised by the Australian Government. BCNA’s campaign included direct approaches to the Prime Minister, the Health Minister and other key politicians. BCNA also directly approached the Pharmaceutical Benefits Advisory Committee to discuss its concerns. BCNA’s members also voiced their concerns to the government, including through a media campaign coordinated by BCNA. |
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This resulted in pre-election commitments from both major political parties to subsidise Herceptin. After the election, the Herceptin special access program was established to subsidise the cost of Herceptin for women with HER2-positive metastatic breast cancer. In 2015, Herceptin was moved across to the PBS in an agreement that saw two new drugs for HER2-positive breast cancer, Perjeta and Kadcyla, also listed on the PBS. |
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====== '''Early breast cancer Herceptin campaign''' ====== |
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In 2006 the issue of Herceptin emerged again following positive results from a number of clinical trials for the use of Herceptin in women with HER2-positive early breast cancer. BCNA's campaign this time took a partnership approach and BCNA worked closely with the Pharmaceutical Benefits Advisory Committee, the Minister for Health and Ageing, [[Roche]] (the company that produces Herceptin), the Medical Oncology Group of Australia, the then National Breast and Ovarian Cancer Centre and women with breast cancer. |
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When Herceptin was still not available to women some months later, BCNA convened a round table meeting bringing together all the key stakeholders. It was at this meeting that agreement was reached to add Herceptin for women with early breast cancer to the PBS. On 1 October 2006 Herceptin was made available through the PBS.<ref>{{Cite web|url=http://www.pbs.gov.au/info/news/2006/10/listing-of-herceptin|title=Pharmaceutical Benefits Scheme (PBS) {{!}} Listing of Herceptin on the PBS|last=Health|first=Australian Government Department of|website=www.pbs.gov.au|language=en|access-date=2017-08-30}}</ref> |
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====== '''Neoadjuvant Herceptin''' ====== |
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In 2012, BCNA and the Medical Oncology Group of Australia lobbied for neoadjuvant Herceptin to be included on the PBS for women who need this treatment.<ref>{{Cite web|url=https://www.bcna.org.au/about-us/advocacy/position-statements/herceptin-prior-to-surgery/|title=https://www.bcna.org.au/about-us/advocacy/position-statements/herceptin-prior-to-surgery/|website=www.bcna.org.au|access-date=2017-08-30}}</ref> The application was approved by the Pharmaceutical Benefits Advisory Committee and [[Neoadjuvant therapy|neoadjuvant]] Herceptin was listed on the PBS from 1 December 2012.<ref>{{Cite journal|last=Daniels|first=Benjamin|last2=Lord|first2=Sarah J|last3=Kiely|first3=Belinda E|last4=Houssami|first4=Nehmat|last5=Haywood|first5=Philip|last6=Lu|first6=Christine Y|last7=Ward|first7=Robyn L|last8=Pearson|first8=Sallie-Anne|date=2017-01-24|title=Use and outcomes of targeted therapies in early and metastatic HER2-positive breast cancer in Australia: protocol detailing observations in a whole of population cohort|url=http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5278255/|journal=BMJ Open|volume=7|issue=1|doi=10.1136/bmjopen-2016-014439|issn=2044-6055|pmc=PMC5278255|pmid=28119394}}</ref> |
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====== '''Subcutaneous Herceptin''' ====== |
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In 2015, BCNA supported an application to have subcutaneously-administered Herceptin (Herceptin SC) added to the PBS for the treatment of people with HER2-positive breast cancer. The application was approved by the Pharmaceutical Benefits Advisory Committee and Herceptin SC was listed on the PBS from 1 April 2016.<ref>{{Cite web|url=http://www.pbs.gov.au/info/industry/pricing/pbs-items/f1-5percent-spr-1-april-2016|title=Pharmaceutical Benefits Scheme (PBS) {{!}} F1 5% Statutory Price Reduction on 1 April 2016 - List of Affected Drugs|last=Health|first=Australian Government Department of|website=www.pbs.gov.au|language=en|access-date=2017-08-30}}</ref> |
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== Events and campaigns == |
== Events and campaigns == |
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Key BCNA fundraising initiatives include the ''Field of Women'' events held in 2005 ([[MCG]]),<ref>[http://www.theage.com.au/news/National/Breast-cancer-survivor-to-kick-a-major-goal/2005/04/29/1114635748434.html Breast cancer survivor to kick a major goal]. ''The Age''. 2005-04-30.</ref> 2007 (SCG), 2010 (MCG),<ref>[http://marngrookfootyshow.com.au/node/140 Bulldogs and Demons join forces to raise awareness about breast cancer] {{Webarchive|url=https://web.archive.org/web/20101114051455/http://marngrookfootyshow.com.au/node/140 |date=14 November 2010 }}. ''Marngrook Footy Show''. 2010-02-03.</ref> 2014 (MCG) and 2018 (MCG). At the 2018 event, the most recent, 15,000 people in pink ponchos formed the Pink Lady silhouette, bringing the national breast cancer statistics to life in a sparkling display of strength and support on BCNA's 20th anniversary. |
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BCNA has held a number of notable fundraising initiatives. |
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The ''Field of Women'' events have now been adapted to be held in communities across Australia every year. These events are called ''Mini-Fields of Women''. They centre around a visual display of 100 Pink Lady silhouettes planted in the ground or on display, and often include a simple ceremony. Personal messages are displayed on the silhouettes by family and friends. |
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In September 2010, AFL champion [[Shane Crawford]] embarked on a 780 km walk from Adelaide to Melbourne called That's What I'm Walkin' About.<ref>{{Cite news|url=http://www.adelaidenow.com.au/entertainment/celebrity/footy-show-star-shane-crawfords-walk-for-cancer/news-story/1909c38c0d511db0b952a444fb2ef80e?sv=50e8696ebf2cc9074427bf5359fd1aaf|title=Footy Show star's walk for cancer|access-date=2017-08-30}}</ref> Crawford's efforts raised $500,000 for BCNA.<ref>{{Cite web|url=http://tlaworldwide.com/talent/shane-crawford-2/|title=Shane Crawford {{!}} TLA|website=tlaworldwide.com|access-date=2017-08-30}}</ref> In 2013, Shane Crawford then raised more than $1.32 million for BCNA after riding 3,600 kilometres (2,200 miles) from Melbourne to Perth in 22 days on his Tour de Crawf bicycle ride.<ref>{{Cite news|url=http://www.heraldsun.com.au/news/victoria/shane-crawfords-massive-bike-ride-nets-13-million/news-story/989ba6e3c6498e79188fafbee0d538f1|title=Crawf's cancer ride nets $1.3 million|access-date=2017-08-30}}</ref> |
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In September 2010, AFL champion [[Shane Crawford]] embarked on a marathon walk from Adelaide to Melbourne, ''That's What I'm Walkin' About''. Crawford's efforts raised $500,000 for BCNA and he continues to support the organisation. In 2013, Shane Crawford then raised more than $1.32 million for BCNA after riding {{convert|3600|km}} from Melbourne to Perth in 22 days on his marathon ''Tour de Crawf'' from 20 June to 11 July. |
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Field of Women events held in 2005 ([[MCG]]), 2007 (SCG), 2010 (MCG) and 2014 (MCG) have drawn survivors together to raise awareness of Australians affected by breast cancer. At the last Field of Women event in 2014, 15,000 people in pink ponchos formed the Pink Lady silhouette, bringing national breast cancer statistics to life in a display of strength and support.<ref>{{Cite news|url=http://www.heraldsun.com.au/leader/inner-east/malvern-east-mum-helen-hally-to-join-15000-for-field-of-women-at-the-mcg/news-story/8f9f7fd2a82887d5aa825ca78c3cac35|title=Standing pink for cancer research|access-date=2017-08-30}}</ref> The next Field of Women is scheduled at the MCG in Melbourne in 2018 as part of BCNA’s 20<sup>th</sup> Anniversary celebrations. |
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Key annual BCNA fundraising and awareness campaigns include Pink Sports Day and the [[Bakers Delight]] Pink Bun campaign. The Pink Bun campaign is an annual three week fundraising campaign which sees every Bakers Delight bakery around Australia donate 100% of the sale of their Pink Finger Buns and Paper Pink Lady cut outs to BCNA. In 2018, BCNA and Bakers Delight are celebrating 17 years of working together to support Australians affected by breast cancer. Over the past 17 years Bakers Delight has donated a total of $18 million worth of funds and pro-bono services to BCNA.<ref>[https://www.heraldsun.com.au/news/opinion/making-the-charity-dollar-and-a-helping-hand-work/news-story Making the charity dollar and a helping hand work]. ''Herald Sun''. 2015-02-11.</ref><ref>{{Cite news|url=https://www.medianet.com.au/releases/160610/|title=Buy a Pink Bun at your local Bakers Delight to raise money for Breast Cancer Network Australia|work=AAP Medianet|access-date=2018-11-07|language=en-US}}</ref> |
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The Field of Women events have also inspired a number of communities across Australia every year to host their own Mini-Field of Women.<ref>{{Cite web|url=https://www.bcna.org.au/news-events/hold-an-event/mini-field-of-women-tribute-events/|title=Mini-Field of Women tribute events|website=www.bcna.org.au|access-date=2017-08-30}}</ref> They centre around a visual display of 100 Pink Lady silhouettes planted in the ground or on display, and often include a simple ceremony. Personal messages are displayed on the silhouettes by family and friends. |
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The [[Melbourne Football Club]], [[Australian Football League|AFL]] and [[Melbourne Cricket Club]] have been key supporters of BCNA, hosting a Pink Lady Match at the MCG annually since 2015<ref>{{Cite web|url=http://www.afl.com.au/news/event-news/fieldofwomen|title=Pink Lady Match - AFL.com.au|website=afl.com.au|access-date=2017-08-30}}</ref> to raise funds for the organisation. |
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Since 2004, BCNA’s major fundraising initiative has been the [[Bakers Delight]] Pink Bun campaign. The Pink Bun campaign is an annual three-week fundraising campaign, which sees every Bakers Delight bakery around Australia donate 100 per cent of the sale of their Pink Finger Buns and Paper Pink Lady cut outs to BCNA. In 2017, Bakers Delight donated a record $1.8 million dollars to the organisation from the campaign.<ref>{{Cite web|url=https://www.bcna.org.au/news/2017/06/pink-bun-campaign-raises-record-18-million/|title=Pink Bun campaign raises record $1.8 million {{!}} Latest news - Breast Cancer Network Australia|website=www.bcna.org.au|access-date=2017-08-30}}</ref> Since 2000, Bakers Delight has donated over $18 million worth of funds and pro-bono services to BCNA. |
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BCNA continues to raise funds and awareness for Australians affected by breast cancer with a number of additional campaigns, including: |
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* Pink Sports Day |
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* Pink Lady Luncheons |
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* Pink Lady Events |
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* Dine Pink |
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* Pink Butcher |
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* Ride Daylesford |
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* Inspired Adventures |
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* Carman’s Women’s Fun Run<ref>{{Cite web|url=http://carmanswomensfunrun.com.au/|title=Carman's Women's Fun Run – Carman's Women's Fun Run|website=carmanswomensfunrun.com.au|language=en-US|access-date=2017-08-30}}</ref> |
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== Patron and board == |
== Patron and board == |
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''Patron'' |
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*Her Excellency Ms [[Quentin Bryce]] AC, Governor-General of the Commonwealth of Australia |
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''Patron'' |
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* Her Excellency Ms [[Quentin Bryce]] AD, CVO |
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''Board'' |
''Board'' |
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* |
*[[Kathryn Fagg]], AO (chair) |
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*Prof. Jacinta Elston (deputy chair) |
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* Michael Happell (Deputy Chair) |
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*Megan James (deputy chair) |
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* [[Raelene Boyle]], AM MBE |
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*Lisa Montgomery, AIFS (deputy chair) |
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* Jacinta Elston |
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*[[Raelene Boyle]], AM MBE |
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* Megan James |
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*Prof. Fran Boyle, AM |
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* Dorothy Keefe |
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* Bruce Mann |
*Prof. Bruce Mann |
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*Clare Power |
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* Lisa Montgomery, AIFS |
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* Debbie Smith |
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* Fran Boyle |
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''CEO'' |
''CEO'' |
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*Kirsten Pilatti |
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* Christine Nolan (2015 - present) |
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''Founder'' |
''Founder'' |
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* |
*[[Lyn Swinburne]], AO (founder and former CEO) |
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==References== |
==References== |
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== External links == |
== External links == |
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*[ |
*[https://www.bcna.org.au/ Official website - Breast Cancer Network Australia] |
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*[https://www.canceraustralia.gov.au/impacted-cancer/cancer-support-organisations/ Australian Government Cancer support organisations] |
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{{Authority control}} |
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[[Category:Breast cancer organizations]] |
[[Category:Breast cancer organizations]] |
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[[Category:Cancer |
[[Category:Cancer organisations based in Australia]] |
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[[Category:Organisations based in Melbourne]] |
[[Category:Organisations based in Melbourne]] |
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[[Category:Health charities in Australia]] |
[[Category:Health charities in Australia]] |
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[[Category:Medical and health organisations based in Victoria (state)]] |
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Latest revision as of 15:57, 24 November 2024
 | This article contains promotional content. (November 2024) |
 BCNA logo | |
| Abbreviation | BCNA |
|---|---|
| Established | 1998 |
| Founder | Lyn Swinburne |
| Legal status | charity |
| Purpose | Support for Australians affected by breast cancer |
| Location |
|
CEO | Kirsten Pilatti |
| Website | www |
Breast Cancer Network Australia (BCNA) is a not-for-profit organisation that supports Australians affected by breast cancer.[1] BCNA aims to ensure that Australians affected by breast cancer receive support, information, treatment and care appropriate to their needs.
BCNA is the peak national organisation for Australians affected by breast cancer, and consists of a network of more than 120,000 individual members and 300 Member Groups.[2]
History
[edit]In 1998, Lyn Swinburne envisaged an organisation that would positively influence the way breast cancer was discussed in the community. Her goal was for people to talk openly about the disease and acknowledge its personal impact.[3]
Following a public meeting in every state and territory, over 300 women came together to discuss issues affecting women with breast cancer. An action plan was developed and the official launch of BCNA took place following this conference, at the inaugural Field of Women, a visual display of breast cancer statistics on the lawns of Parliament House in Canberra.[4]
BCNA's vision is a better journey for all Australians affected by breast cancer.
BCNA's mission is to ensure that Australians affected by breast cancer receive the very best support, information, treatment and care appropriate to their individual needs.[5]
- support: support and empower all Australians with a breast cancer diagnosis through services, resources and programs
- inform: develop and provide high quality information in a range of formats including information that can empower participation in decisions about treatment and care
- represent: advocate on behalf of Australians affected by or at risk of breast cancer and work to set the best possible treatment and care standards
- connect: strive to help Australians affected by breast cancer to feel less alone throughout their treatment and beyond. Connect people through their shared breast cancer experience to build support for individuals, groups and communities
Lyn retired as CEO of BCNA in November 2011.[6] Maxine Morand served as CEO from November 2011 until December 2014.[7][8] Christine Nolan retired after three years as CEO in February 2018.[9] Kirsten Pilatti is currently CEO.[10]
BCNA is one of a number of major breast cancer organisations in Australia. BCNA works cooperatively with the other national organisations including Cancer Australia,[11] National Breast Cancer Foundation (NBCF),[12] McGrath Foundation [13] and BreastScreen Australia.[14]
Events and campaigns
[edit]Key BCNA fundraising initiatives include the Field of Women events held in 2005 (MCG),[15] 2007 (SCG), 2010 (MCG),[16] 2014 (MCG) and 2018 (MCG). At the 2018 event, the most recent, 15,000 people in pink ponchos formed the Pink Lady silhouette, bringing the national breast cancer statistics to life in a sparkling display of strength and support on BCNA's 20th anniversary.
The Field of Women events have now been adapted to be held in communities across Australia every year. These events are called Mini-Fields of Women. They centre around a visual display of 100 Pink Lady silhouettes planted in the ground or on display, and often include a simple ceremony. Personal messages are displayed on the silhouettes by family and friends.
In September 2010, AFL champion Shane Crawford embarked on a marathon walk from Adelaide to Melbourne, That's What I'm Walkin' About. Crawford's efforts raised $500,000 for BCNA and he continues to support the organisation. In 2013, Shane Crawford then raised more than $1.32 million for BCNA after riding 3,600 kilometres (2,200 mi) from Melbourne to Perth in 22 days on his marathon Tour de Crawf from 20 June to 11 July.
Key annual BCNA fundraising and awareness campaigns include Pink Sports Day and the Bakers Delight Pink Bun campaign. The Pink Bun campaign is an annual three week fundraising campaign which sees every Bakers Delight bakery around Australia donate 100% of the sale of their Pink Finger Buns and Paper Pink Lady cut outs to BCNA. In 2018, BCNA and Bakers Delight are celebrating 17 years of working together to support Australians affected by breast cancer. Over the past 17 years Bakers Delight has donated a total of $18 million worth of funds and pro-bono services to BCNA.[17][18]
Patron and board
[edit]Patron
- Her Excellency Ms Quentin Bryce AC, Governor-General of the Commonwealth of Australia
Board
- Kathryn Fagg, AO (chair)
- Prof. Jacinta Elston (deputy chair)
- Megan James (deputy chair)
- Lisa Montgomery, AIFS (deputy chair)
- Raelene Boyle, AM MBE
- Prof. Fran Boyle, AM
- Prof. Bruce Mann
- Clare Power
CEO
- Kirsten Pilatti
Founder
- Lyn Swinburne, AO (founder and former CEO)
References
[edit]- ^ Guide to Giving Archived 12 June 2012 at the Wayback Machine. Pro Bono Australia. (2010).
- ^ "Who We Are". Breast Cancer Network Australia. 2016.
- ^ Changemakers – Lyn Swinburne. Pro Bono Australia News. 2011-11-28.
- ^ History of the field Archived 17 March 2012 at the Wayback Machine. Field of Women Live. (2010).
- ^ "Vision, mission and values | Breast Cancer Network Australia". www.bcna.org.au. Archived from the original on 7 November 2018. Retrieved 7 November 2018.
- ^ Breast Cancer Leader Farewelled. Pro Bono Australia News. 2011-10-25.
- ^ New appointments and departures Archived 7 March 2012 at the Wayback Machine. Third Sector News. 2011-09-27.
- ^ A job close to former minister Maxine Morand’s heart. Herald Sun. 2012-04-28.
- ^ "BCNA CEO Christine Nolan announces retirement". www.bcna.org.au. Archived from the original on 7 November 2018. Retrieved 6 November 2018.
- ^ "CEO, Kirsten Pilatti". www.bcna.org.au. Retrieved 6 November 2018.
- ^ Who’s who in breast cancer Archived 21 March 2012 at the Wayback Machine. Cancer Australia. (2011).
- ^ Useful Links. National Breast Cancer Foundation. (2012).
- ^ Resources Archived 15 June 2012 at the Wayback Machine. McGrath Foundation. (2012).
- ^ About the Program Archived 22 June 2012 at the Wayback Machine. BreastScreen Australia. (2012).
- ^ Breast cancer survivor to kick a major goal. The Age. 2005-04-30.
- ^ Bulldogs and Demons join forces to raise awareness about breast cancer Archived 14 November 2010 at the Wayback Machine. Marngrook Footy Show. 2010-02-03.
- ^ Making the charity dollar and a helping hand work. Herald Sun. 2015-02-11.
- ^ "Buy a Pink Bun at your local Bakers Delight to raise money for Breast Cancer Network Australia". AAP Medianet. Retrieved 7 November 2018.
External links
[edit]- Official website - Breast Cancer Network Australia
- Australian Government Cancer support organisations
| International | |
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| National | |
