Zebra print ribbon: Difference between revisions
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[[File:Zebra_ribbon.svg|alt=Awareness ribbon with black and white zebra-style stripes|thumb|243x243px]] |
[[File:Zebra_ribbon.svg|alt=Awareness ribbon with black and white zebra-style stripes|thumb|243x243px]] |
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The '''zebra print ribbon''' is the [[awareness ribbon]] for uncommon or rare diseases and cancers including but not limited to [[neuroendocrine tumor]]s, [[Carcinoid|carcinoid cancer]], [[Ehlers–Danlos syndromes|Ehlers-Danlos Syndromes]], [[Whipple's disease]] and awareness of other rare diseases, cancers and disorders. The [[Zebra (medicine)|zebra]] has been used as a symbol for rare diseases since around 1940. Dr. [[Theodore Woodward]], a professor at the University of Maryland's School of Medicine<ref name=":0">{{Cite web |last=Dochitect |date=2016-04-13 |title=Hearing hoofbeats: time to think zebras? {{!}} Dochitect {{!}} Medicine and Architecture Integrated. Healthcare Innovated. |url=https://www.dochitect.com/hearing-hoofbeats-time-to-think-zebras/ |access-date=2022-07-14 |website=Dochitect |language=en-US}}</ref> used this term to teach students the basics of diagnosing disease: When looking at a patient's symptoms, it is better to assume it is a common ailment, not a rare one – a horse rather than a zebra.<ref name=":0" /> National [[Rare Disease Day]] is held on February 29, but is moved up a day on non-leap years. This day was launched by the [[European Organization for Rare Diseases]] and is now recognized worldwide. The symbol for rare disease awareness is a black and white striped ribbon.<ref name=":1">{{Cite web |date=2019-02-05 |title=Le ruban zébré, symbole des maladies rares |url=https://laforcedmd.com/le-ruban-zebre-symbole-des-maladies/ |access-date=2022-07-14 |website=La Force dmd |language=fr-FR}}</ref> |
The '''zebra print ribbon''' is the [[awareness ribbon]] for uncommon or rare diseases and cancers including but not limited to [[neuroendocrine tumor]]s, [[Carcinoid|carcinoid cancer]], [[Ehlers–Danlos syndromes|Ehlers-Danlos Syndromes]], [[Whipple's disease]] and awareness of other rare diseases, cancers and disorders. |
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== Origin == |
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The [[Zebra (medicine)|zebra]] has been used as a symbol for rare diseases since around 1940. Dr. [[Theodore Woodward]], a professor at the University of Maryland's School of Medicine<ref name=":0">{{Cite web |last=Dochitect |date=2016-04-13 |title=Hearing hoofbeats: time to think zebras? {{!}} Dochitect {{!}} Medicine and Architecture Integrated. Healthcare Innovated. |url=https://www.dochitect.com/hearing-hoofbeats-time-to-think-zebras/ |access-date=2022-07-14 |website=Dochitect |language=en-US}}</ref> used this term to teach students the basics of diagnosing disease: "''When looking at a patient's symptoms, it is better to assume it is a common ailment, not a rare one – a horse rather than a zebra''."<ref name=":0" /> |
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== Usage == |
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=== National Rare Disease Day === |
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National [[Rare Disease Day]] is held on February 29, but is moved up a day on non-leap years. This day was launched by the [[European Organization for Rare Diseases]] and is now recognized worldwide. The symbol for rare disease awareness is a black and white striped ribbon.<ref name=":1">{{Cite web |date=2019-02-05 |title=Le ruban zébré, symbole des maladies rares |url=https://laforcedmd.com/le-ruban-zebre-symbole-des-maladies/ |access-date=2022-07-14 |website=La Force dmd |language=fr-FR}}</ref> |
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In the US, the [[National Organization for Rare Disorders]] brings to light rare diseases, listing and defining more than 1,200 rare diseases that fall under the zebra awareness ribbon.<ref>{{Cite web |last=admin |title=List of Rare Disease Information |url=https://rarediseases.org/for-patients-and-families/information-resources/rare-disease-information/ |access-date=2022-07-14 |website=NORD (National Organization for Rare Disorders) |language=en-US}}</ref> One of the rarest diseases on the list is the [[neuroendocrine tumor]]s; this diagnosis has only been given to 2% of the cancers in the US. This cancer can go undiagnosed for a long time due to difficulty in detection and diagnosis.<ref>{{Cite web |title=Understanding the Zebras of the Cancer World |url=https://www.roswellpark.org/cancertalk/202011/understanding-zebras-cancer-world |access-date=2022-07-14 |website=Roswell Park Comprehensive Cancer Center |language=en}}</ref> [[Whipple's disease]], another rare disease on the list, is a bacterial infection that is often mistaken for other diseases, requiring a [[biopsy]] of the [[stomach]] or [[duodenum]] looking for the bacteria ''[["Tropheryma"|Tropheryma Whipplei]]''.<ref>{{Cite journal |last1=Klochan |first1=Christen |last2=Anderson |first2=Teresa A. |last3=Rose |first3=Dusten |last4=Dimitrov |first4=Rosen K. |last5=Johnson |first5=Raymond M. |date=10 October 2013 |title=Nearly Fatal Case of Whipple's Disease in a Patient Mistakenly on Anti-TNF Therapy |journal=ACG Case Reports Journal |volume=1 |issue=1 |pages=25–28 |doi=10.14309/crj.2013.11 |issn=2326-3253 |pmc=4435267 |pmid=26157813}}</ref> The zebra ribbon is also used for awareness of [[Ehlers–Danlos syndromes]], a group of genetic connective tissue illnesses.<ref>{{Cite web|last=EDS-F|first=Bitterlin|date=2017-06-13|title=Zebra Ribbon|url=https://edsfonds.com/2017/06/13/zebra-ribbon/|access-date=2020-06-07|website=EDS-Foundation Netherlands|language=nl}}</ref> |
In the US, the [[National Organization for Rare Disorders]] brings to light rare diseases, listing and defining more than 1,200 rare diseases that fall under the zebra awareness ribbon.<ref>{{Cite web |last=admin |title=List of Rare Disease Information |url=https://rarediseases.org/for-patients-and-families/information-resources/rare-disease-information/ |access-date=2022-07-14 |website=NORD (National Organization for Rare Disorders) |language=en-US}}</ref> One of the rarest diseases on the list is the [[neuroendocrine tumor]]s; this diagnosis has only been given to 2% of the cancers in the US. This cancer can go undiagnosed for a long time due to difficulty in detection and diagnosis.<ref>{{Cite web |title=Understanding the Zebras of the Cancer World |url=https://www.roswellpark.org/cancertalk/202011/understanding-zebras-cancer-world |access-date=2022-07-14 |website=Roswell Park Comprehensive Cancer Center |language=en}}</ref> [[Whipple's disease]], another rare disease on the list, is a bacterial infection that is often mistaken for other diseases, requiring a [[biopsy]] of the [[stomach]] or [[duodenum]] looking for the bacteria ''[["Tropheryma"|Tropheryma Whipplei]]''.<ref>{{Cite journal |last1=Klochan |first1=Christen |last2=Anderson |first2=Teresa A. |last3=Rose |first3=Dusten |last4=Dimitrov |first4=Rosen K. |last5=Johnson |first5=Raymond M. |date=10 October 2013 |title=Nearly Fatal Case of Whipple's Disease in a Patient Mistakenly on Anti-TNF Therapy |journal=ACG Case Reports Journal |volume=1 |issue=1 |pages=25–28 |doi=10.14309/crj.2013.11 |issn=2326-3253 |pmc=4435267 |pmid=26157813}}</ref> The zebra ribbon is also used for awareness of [[Ehlers–Danlos syndromes]], a group of genetic connective tissue illnesses.<ref>{{Cite web|last=EDS-F|first=Bitterlin|date=2017-06-13|title=Zebra Ribbon|url=https://edsfonds.com/2017/06/13/zebra-ribbon/|access-date=2020-06-07|website=EDS-Foundation Netherlands|language=nl}}</ref> |
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[[Category:February observances]] |
[[Category:February observances]] |
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[[Category:Cancer awareness]] |
[[Category:Cancer awareness]] |
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{{Activism-stub}} |
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Revision as of 23:36, 6 November 2023
The zebra print ribbon is the awareness ribbon for uncommon or rare diseases and cancers including but not limited to neuroendocrine tumors, carcinoid cancer, Ehlers-Danlos Syndromes, Whipple's disease and awareness of other rare diseases, cancers and disorders.
Origin
The zebra has been used as a symbol for rare diseases since around 1940. Dr. Theodore Woodward, a professor at the University of Maryland's School of Medicine[1] used this term to teach students the basics of diagnosing disease: "When looking at a patient's symptoms, it is better to assume it is a common ailment, not a rare one – a horse rather than a zebra."[1]
Usage
National Rare Disease Day
National Rare Disease Day is held on February 29, but is moved up a day on non-leap years. This day was launched by the European Organization for Rare Diseases and is now recognized worldwide. The symbol for rare disease awareness is a black and white striped ribbon.[2]
In the US, the National Organization for Rare Disorders brings to light rare diseases, listing and defining more than 1,200 rare diseases that fall under the zebra awareness ribbon.[3] One of the rarest diseases on the list is the neuroendocrine tumors; this diagnosis has only been given to 2% of the cancers in the US. This cancer can go undiagnosed for a long time due to difficulty in detection and diagnosis.[4] Whipple's disease, another rare disease on the list, is a bacterial infection that is often mistaken for other diseases, requiring a biopsy of the stomach or duodenum looking for the bacteria Tropheryma Whipplei.[5] The zebra ribbon is also used for awareness of Ehlers–Danlos syndromes, a group of genetic connective tissue illnesses.[6]
Rare Disease Day
The zebra-print ribbon has been popularized by Rare Disease Day,[7] also known as Rare Disease Awareness Day, which began in 2008.[8][9] The date of February 29 was chosen because it is a "rare day" due to the leap year.[10] On years that are not a leap year, Rare Disease Day is held on February 28.[11]
See also
References
- ^ a b Dochitect (2016-04-13). "Hearing hoofbeats: time to think zebras? | Dochitect | Medicine and Architecture Integrated. Healthcare Innovated". Dochitect. Retrieved 2022-07-14.
- ^ "Le ruban zébré, symbole des maladies rares". La Force dmd (in French). 2019-02-05. Retrieved 2022-07-14.
- ^ admin. "List of Rare Disease Information". NORD (National Organization for Rare Disorders). Retrieved 2022-07-14.
- ^ "Understanding the Zebras of the Cancer World". Roswell Park Comprehensive Cancer Center. Retrieved 2022-07-14.
- ^ Klochan, Christen; Anderson, Teresa A.; Rose, Dusten; Dimitrov, Rosen K.; Johnson, Raymond M. (10 October 2013). "Nearly Fatal Case of Whipple's Disease in a Patient Mistakenly on Anti-TNF Therapy". ACG Case Reports Journal. 1 (1): 25–28. doi:10.14309/crj.2013.11. ISSN 2326-3253. PMC 4435267. PMID 26157813.
- ^ EDS-F, Bitterlin (2017-06-13). "Zebra Ribbon". EDS-Foundation Netherlands (in Dutch). Retrieved 2020-06-07.
- ^ "NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!". NORD (National Organization for Rare Disorders). 2019-01-16. Retrieved 2020-06-07.
- ^ Parisse-Brassens, Jerome (December 2007). "29 February 2008: First European Rare Disease Day". European Organisation for Rare Diseases. Archived from the original on September 29, 2008. Retrieved 14 February 2009.
- ^ "History of Rare Disease Day". National Organization for Rare Disorders.
- ^ Parisse-Brassens, Jerome (December 2007). "29 February 2008: First European Rare Disease Day". European Organisation for Rare Diseases. Archived from the original on May 23, 2009. Retrieved 14 February 2009.
- ^ "February 29th Is The First Rare Disease Day". Medical News Today. 28 February 2008. Retrieved 14 February 2009.
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