Talk:Autism spectrum: Difference between revisions
MiszaBot I (talk | contribs) m Robot: Archiving 2 threads (older than 30d) to Talk:Autism/Archive 14. |
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:'''Note''' this IP editor was the subject of an ANI discussion found at [[WP:ANI_AUTISM_IP]] in which it was found the editor has been engaging in a long history of disruption of Wikipedia autism articles, specifically in promoting the "maternal antibodies" theory. As a result of that discussion, anyone who finds their edits disruptive may revert them without comment. <code>[[User:Zad68|<span style="color:#D2691E">'''Zad'''</span>]][[User_Talk:Zad68|<span style="color:#206060">''68''</span>]]</code> 17:51, 12 July 2013 (UTC) |
:'''Note''' this IP editor was the subject of an ANI discussion found at [[WP:ANI_AUTISM_IP]] in which it was found the editor has been engaging in a long history of disruption of Wikipedia autism articles, specifically in promoting the "maternal antibodies" theory. As a result of that discussion, anyone who finds their edits disruptive may revert them without comment. <code>[[User:Zad68|<span style="color:#D2691E">'''Zad'''</span>]][[User_Talk:Zad68|<span style="color:#206060">''68''</span>]]</code> 17:51, 12 July 2013 (UTC) |
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Zad -- if I had been rehashing the same old points this would be an appropriate criticism. The fact is, I brought the subject up again and again because there was more and more evidence for it. Secondary sources for example, as more and more review papers were published. I asked for comment on the NEW sources. It is true, again and again, when I cited new sources, my edits were removed from Talk:Autism by someone, so the new sources were not seen by all editors, but I could not prevent that, and now someone removes the edits where I point this out repeatedly. |
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The MAR theory of autism is now well publicized but still this article should contain it, for the same reasons I gave 4 years back, it has very important clinical and life decision implications. Not everyone will see the press reports on the subject, though hopefully they will have a competent doctor who is aware of the JAMA Pediatric review paper explaining it. |
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That's right, JAMA Pediatrics, a "reliable secondary source", but of course my links to that got removed instantly. |
Revision as of 17:35, 15 July 2013
This is the talk page for discussing improvements to the Autism spectrum redirect. This is not a forum for general discussion of the article's subject. |
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Many of these questions have been raised in the scientific and popular literature, and are summarized here for ease of reference. The main points of this FAQ can be summarized as:
Q1: Why doesn't this article discuss the association between vaccination and autism?
A1: This association has been researched, and is mentioned in the page - specifically with some variant of the statement "there is no convincing evidence that vaccination causes autism and an association between the two is considered biologically implausible". Despite strong feelings by parents and advocates, to the point of leaving children unvaccinated against serious, sometimes deadly diseases, there is simply no scientific evidence to demonstrate a link between the two. Among the organizations that have reviewed the evidence between vaccination and autism are the Centers for Disease Control and Prevention (United States), Institute of Medicine (United States), National Institutes of Health (United States), American Medical Association, the Cochrane Collaboration (British/international), British Medical Association (Britain), National Health Service (United Kingdom), Health Canada (Canada) and the World Health Organization (international). The scientific community took this issue seriously, investigated the hypothesis, designed and published many studies involving millions of children, and they all converged on a lack of association between autism and vaccination. Given the large number of children involved, the statistical power of these studies was such that any association, even an extremely weak one, would have been revealed. Continuing to press the issue causes unnecessary anguish for parents and places their children, and other children at risk of deadly diseases (that disproportionately harm the unvaccinated).[1][2][3] Q2: Why doesn't this article discuss the association between thiomersal, aluminum, squalene, toxins in vaccines?
A2: Thiomersal has also been investigated and no association is found between the two. Vaccines are heavily reviewed for safety beforehand, and since they are given to millions of people each year, even rare complications or problems should become readily apparent. The amount of these additives in each vaccine is minuscule, and not associated with significant side effects in the doses given. Though many parents have advocated for and claimed harm from these additives, without a plausible reason to expect harm, or demonstrated association between autism and vaccination, following these avenues wastes scarce research resources that could be better put to use investigating more promising avenues of research or determining treatments or quality-of-life improving interventions for the good of parents and children.
Specifically regarding "toxins", these substances are often unnamed and only vaguely alluded to - a practice that results in moving the goalposts. Once it is demonstrated that an ingredient is not in fact harmful, advocates will insist that their real concern is with another ingredient. This cycle perpetuates indefinitely, since the assumption is generally a priori that vaccines are harmful, and no possible level of evidence is sufficient to convince the advocate otherwise. Q3: Why doesn't this article discuss X treatment for autism?
A3: For one thing, X may be discussed in the autism therapies section. Though Wikipedia is not paper and each article can theoretically expand indefinitely, in practice articles have restrictions in length due to reader fatigue. Accordingly, the main interventions for autism are dealt with in summary style while minor or unproven interventions are left to the sub-article. Q4: My child was helped by Y; I would like to include a section discussing Y, so other parents can similarly help their children.
A4: Wikipedia is not a soapbox; despite how important or effective an intervention may seem to be, ultimately it must be verified in reliable, secondary sources that meet the guidelines for medical articles. Personal testimonials, in addition to generally being considered unreliable in scientific research, are primary sources and can only be synthesized through inappropriate original research. If the intervention is genuinely helpful for large numbers of people, it is worth discussing it with a researcher, so it can be studied, researched, published and replicated. When that happens, Wikipedia can report the results as scientific consensus indicates the intervention is ethical, effective, widely-used and widely accepted. Wikipedia is not a crystal ball and can not be used to predict or promote promising interventions that lack evidence of efficacy. Without extensive testing, Wikipedia runs the risk of promoting theories and interventions that are either invalid (the Refrigerator mother hypothesis), disproven (secretin and facilitated communication),[4] or dangerous (chelation therapy, which resulted in the death of a child in 2005).[5] Q5: Why doesn't this article discuss Z cause of autism? Particularly since there is this study discussing it!
A5: No ultimate cause has been found for autism. All indications are that it is a primarily genetic condition with a complex etiology that has to date eluded discovery. With thousands of articles published every year on autism, it is very easy to find at least one article supporting nearly any theory. Accordingly, we must limit the page to only the most well-supported theories, as demonstrated in the most recent, reliable, high-impact factor sources as a proxy for what is most accepted within the community. Q6: Why does/doesn't the article use the disease-based/person-first terminology? It is disrespectful because it presents people-with-autism as flawed.
A6: This aspect of autism is controversial within the autistic community. Many consider autism to be a type of neurological difference rather than a deficit. Accordingly, there is no one preferred terminology. This article uses the terms found in the specific references. Q7: Why doesn't the article emphasize the savant-like abilities of autistic children in math/memory/pattern recognition/etc.? This shows that autistic children aren't just disabled.
A7: Savant syndrome is still pretty rare, and nonrepresentative of most of those on the autistic spectrum. Research has indicated that most autistic children actually have average math skills.[6] Q8: Why doesn't the article mention maternal antibody related autism or commercial products in development to test for maternal antibodies?
A8: There are no secondary independent third-party reviews compliant with Wikipedia's medical sourcing policies to indicate maternal antibodies are a proven or significant cause of autism, and commercial products in testing and development phase are unproven. See sample discussions here, and conditions under which maternal antibody-related posts to this talk page may be rolled back or otherwise reverted by any editor. References
Past discussions For further information, see the numerous past discussions on these topics in the archives of Talk:Autism:
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The subject of this article is controversial and content may be in dispute. When updating the article, be bold, but not reckless. Feel free to try to improve the article, but don't take it personally if your changes are reversed; instead, come here to the talk page to discuss them. Content must be written from a neutral point of view. Include citations when adding content and consider tagging or removing unsourced information. |
This is the talk page for discussing improvements to the Autism spectrum redirect. This is not a forum for general discussion of the article's subject. |
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Picture
I am really uncomfortable with the picture in the leded, and have changed it (though freely consent that a much better one than mine may be available). This is an identifiable child, doing something we are told is a characteristic autistic behaviour. Is the child autistic? Maybe, but the child hasn't consented to be used as an exemplar of autism and is unlikely to be a notable individual or notable example of autistic spectrum disorders. Guy (Help!) 20:10, 30 May 2013 (UTC)
- This has been the picture for a long time, and this has been discussed in the past. We are free to use it as well. The kid's Mom gave consent for us to use it actually if you look at the file itself. Dbrodbeck (talk) 20:25, 30 May 2013 (UTC)
- Original image upload page gives this youtube link. Description on youtube is liberal about identity of the child and use of the video. I don't see any problem using this image. neo (talk)
- I am still really uncomfortable about it. The WP:ORish caption, the identifiable child, both seem distinctly un-Wikipedian to me. Guy (Help!) 21:41, 30 May 2013 (UTC)
- All images are original research and we cannot get around that. If this were a requirement for images we would more or less have to delete them all. I support it continued inclusion. Doc James (talk · contribs · email) (if I write on your page reply on mine) 11:07, 31 May 2013 (UTC)
- The Asperger image being used as replacement has been deleted before for failing to meet NFCC criteria, see Wikipedia:Files_for_deletion/2009_March_18#Asperger-Vienna-clinic.jpeg. No one seemed to question it when it was re-uploaded but I'm just saying that it has been questioned in the past. —Soap— 02:46, 1 June 2013 (UTC)
- All images are original research and we cannot get around that. If this were a requirement for images we would more or less have to delete them all. I support it continued inclusion. Doc James (talk · contribs · email) (if I write on your page reply on mine) 11:07, 31 May 2013 (UTC)
- I am still really uncomfortable about it. The WP:ORish caption, the identifiable child, both seem distinctly un-Wikipedian to me. Guy (Help!) 21:41, 30 May 2013 (UTC)
- Original image upload page gives this youtube link. Description on youtube is liberal about identity of the child and use of the video. I don't see any problem using this image. neo (talk)
- I support keeping the picture. We will continue to rely on "home made" pictures because (a) we are a "free content" project so commercial stock pictures can't be used and (b) WMF don't had a budget for hiring their own photographers. And anyway, it is a million times more informative and better quality than the Hans Asperger pic. Colin°Talk 08:33, 1 June 2013 (UTC)
- I also support keeping the picture, per Colin. Lova Falk talk 08:00, 16 June 2013 (UTC)
General consensus among scientists that there are hundreds of causes for autism, article should state this clearly
I realize I put this out before but there is no real doubt among real scientists there are many causes, probably hundreds, and hundreds of genes involved. Not hundreds in any single individual, hundreds of genes in toto for all cases of autism. Of course, it's still true maternal antibodies are the most common cause by far, even at only around 15% or so. The article should include these completely non controversial non refuted statements. — Preceding unsigned comment added by 71.251.59.138 (talk) 22:52, 23 June 2013 (UTC)
CiteULike Autism research paper sharing group
Hopefully some may be able to use the information from the research papers included in the CiteULike Autism research paper library to update and correct this article. dolfrog (talk) 14:48, 3 July 2013 (UTC)
- Thanks Dolfrog!
Zad68
14:53, 3 July 2013 (UTC)- you may also find some of my online PubMed collections related to Autism useful, not all are listed on my user page
- Autism
- Autism (ASD) and MMR
- Autism (ASD) review articles
- Autism and Regression dolfrog (talk) 18:47, 3 July 2013 (UTC)
- Yes and we have recently had adding a box of links to high quality sources. Doc James (talk · contribs · email) (if I write on your page reply on mine) 23:56, 3 July 2013 (UTC)
- So where is this box, hidden where only you can find it i presume dolfrog (talk) 00:16, 4 July 2013 (UTC)
- Yes and we have recently had adding a box of links to high quality sources. Doc James (talk · contribs · email) (if I write on your page reply on mine) 23:56, 3 July 2013 (UTC)
It is at the top of this talk page and looks like this
Ideal sources for Wikipedia's health content are defined in the guideline Wikipedia:Identifying reliable sources (medicine) and are typically review articles. Here are links to possibly useful sources of information about Autism spectrum.
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Doc James (talk · contribs · email) (if I write on your page reply on mine) 00:53, 4 July 2013 (UTC)
Incorrect claim of link between autism and mental retardation
"Mental retardation. The percentage of autistic individuals who also meet criteria for mental retardation has been reported as anywhere from 25% to 70%, a wide variation illustrating the difficulty of assessing autistic intelligence.[165] In comparison, for PDD-NOS the association with mental retardation is much weaker,[166] and by definition, the diagnosis of Asperger's excludes mental retardation.[167]"
This section is outdated and incorrect in its claim. In has been shown that the vast majority of papers and studies that made a claimed link between the two, were found lacking in evidence (many entirely lacking in factual evidence) and often falling short of the requirements of the scientific method, and often relied on the use of testing methods that were based on communication abilities and not actual intelligent thinking abilities (in recent years reanalysis has shown about 97% of papers and studies claiming a link between autism and retardation, either did not have factual evidence or did not have the level of factual evidence required by scientific method). More advanced studies of autistic intelligence using tests that actually measure cognitive ability have shown that autism causes no mental impairment and that the level of mental retardation among autistics is the same as that of the general human population, and that the IQ distribution among autistics is generally the same as that of the general human population.74.74.120.130 (talk) 09:26, 11 July 2013 (UTC)–
- The statement is referenced. Do you have a reference for your claim? Dbrodbeck (talk) 11:27, 11 July 2013 (UTC)
Maternal Antibody Related (MAR) autism reports in the press
It's far past time the article contains reference to Maternal Antibody Related Autism.
Time magazine has an article on it, prompted by the latest paper, which identifies the antigens effected by the more common maternal antibodies. This paper is a major breakthrough, although not all the mechanisms of harm are proven yet, a lot is known on that side of it.
I realize there are legitimate objections to Time, and we can not use it as a science source, but the original peer reviewed papers are usable, and can be used per the medical article rules. Many of them are reviews, and those that are not are not being used to refute reviews, and so forth. All perfectly allowed.
Since about 1/4 of autism cases are linked to maternal antibodies, outside of all genetic causes, and maybe all epigenetic causes, this is the largest single cause. In fact, since only 7 major antigens have been identified, it seems some of the antibodies will be more common causes than any single genetic cause yet known. (23/7 is about equal to 3, no known gene abnormality is known to cause more than 2% of cases).
The past refusal to allow this information in the article was spurious and based on bad faith interpretations of the rules, but plausible arguments, at least plausible to those not really familiar with the research, could be made. Were made, in fact.
But now, there is really no excuse, and I hear only a deafening silence when bringing this up. There are simply too many papers, too many reviews, supporting it.
I suggest something like this under Causes:
About 23% of autism cases have been linked to maternal antibodies to fetal brain. It is strongly suspected these antibodies cross the placenta during pregnancy and cause damage to the developing brain. Repeated studies have detected abnormalities in the offspring of test animnals given the antibodies during pregnancy. Most of the mothers who produce these antibodies have a genetic variant which is associated with an increased likelihood of autoimmune disease. The antibodies have been identified and all are involved in normal brain development. Further research, to identify those at risk for this subtype of autism, and to develop preventive treatments, is being done. A commercial test for the antibodies is being developed by Pediatric Bioscience in California.
I have to go find the citations for all of that but there are many, it's not at all controversial, nothing has been disputed, much less refuted. — Preceding unsigned comment added by 75.61.133.90 (talk) 14:12, 12 July 2013 (UTC)
- Note this IP editor was the subject of an ANI discussion found at WP:ANI_AUTISM_IP in which it was found the editor has been engaging in a long history of disruption of Wikipedia autism articles, specifically in promoting the "maternal antibodies" theory. As a result of that discussion, anyone who finds their edits disruptive may revert them without comment.
Zad68
17:51, 12 July 2013 (UTC)
Zad -- if I had been rehashing the same old points this would be an appropriate criticism. The fact is, I brought the subject up again and again because there was more and more evidence for it. Secondary sources for example, as more and more review papers were published. I asked for comment on the NEW sources. It is true, again and again, when I cited new sources, my edits were removed from Talk:Autism by someone, so the new sources were not seen by all editors, but I could not prevent that, and now someone removes the edits where I point this out repeatedly. The MAR theory of autism is now well publicized but still this article should contain it, for the same reasons I gave 4 years back, it has very important clinical and life decision implications. Not everyone will see the press reports on the subject, though hopefully they will have a competent doctor who is aware of the JAMA Pediatric review paper explaining it. That's right, JAMA Pediatrics, a "reliable secondary source", but of course my links to that got removed instantly.
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