Talk:Chiari malformation

old info

The prognosis section is appallingly out of date. The article cites a secondhand reference to a 1996 study. Given my experience with a child with sb, hydrocephalus, syringiomelia and symptomatic ac ii. I have heard that there are isolated cases of children dying but these are almost always where surgery has not been attempted, e.g. Shunts or decompression. I think the 1996 article is so out of date that reference to it actually leads people astray. Does anyone have better references to use? — Preceding unsigned comment added by 124.179.29.24 (talk) 02:06, 24 April 2012 (UTC)

Appropriate Title?

On all the other websites I have seen, the Arnold-Chiari malformation refers to Chiari Type II malformation(, , ). Has anyone else found that in their research? If so, this page is incorrect because is refers to the "Arnold-Chiari malformation" as being another name for "Chiari Type I malformation". I'm not quite clear on this, so maybe some else can confirm this. Thanks! Doctorsoph (talk) 05:00, 28 May 2008 (UTC)

I believe that's correct. In 1891, Hans Chiari first described the malformation that came to be known as Chiari Type I. In his second paper in 1986, he also described what is now known as Chiari Type II malformation and mentioned that Cleland and Arnold had previously described a similar malformation. The observations by Cleland and Arnold were rather incidental compared to Chiari's more thorough description. Never the less, in 1907, Schwalbe and Gredig (in Arnold's lab) created the term Arnold-Chiari malformation to refer to this type of malformation (Chiari Type II). Thus, in 1949 Russell suggested restricting the use of the term Arnold Chiari malformation to those cases with spina bifida type, that is, or Chiari II malformation.

REF: GHASSANK. BEJJAN. Definition of the adult Chiari malformation: a brief historical overview Neurosurg Focus 11 (1):Article 1, 2001. Loupe (talk) 00:28, 5 July 2008 (UTC)

Can

Can an arm impingement be a catalyst in an Arnold Chiari tramua. I did not know I had this until I experienced an explosion of pain in my arm and later found out that I had this Malformation but at the same time I had an shoulder impingment?

I also have ACM. Based on my memory of comments from my neurologist, I would say that an arm problem cannot cause ACM. I gathered that ACM was a condition from birth, but may not present symptoms for years (or never). You can't "cause" ACM. In my case, I was talking about a childhood diving-into-kiddypool incident. Fracture^Talk   04:50, 5 September 2006 (UTC)

IIRC it can be genetic OR aquired. There was a research published about two fighter pilots having Chiari, for example. But yes either way, a patient may be symptom free, and then some outside factor may trigger the symptoms and possibly worsen the herniation. 24.236.189.199 21:34, 9 January 2007 (UTC)

My wife has ACM Type 1, developed syringomyelia and had decompression surgery to treat it. ACM is a genetic malformation that is usually unnoticed until early adulthood or later. Some people with ACM may not develop any noticeable symptoms. You cannot develop ACM, nor can anything cause it. ACM is the most common cause of syringomyelia, which might also be caused by trauma, tumors and other rare disorders. An arm problem cannot cause ACM or syringomyelia, but the diving-into-kiddypool incident could certainly cause spinal damage. You would need an MRI to determine whether that spinal damage includes a syrinx.

Matthew 1130 14:39, 26 February 2007 (UTC)

Specialists

I believe this section should be deleted as it is simply a type of advertising. I don't see that this section provides any benefits to our readers. Please speak now, or forever hold your peace. Matthew 1130 14:39, 26 February 2007 (UTC)

Agreed. Removed. --Lipothymia 01:53, 14 March 2007 (UTC)

I don't believe this section should be removed. It's very difficult to find a specialist if you suffer from this affliction. If someone is a specialists in this rare affliction I don't see any harm in it being stated here. 16:57 19 December 2010--81.99.133.113 (talk) 16:58, 19 December 2010 (UTC) (FERVG)

Other Species

This condition exists as per a modified version of the Human condition in Cavalier King Charles Spaniels - do we want to add that information here or create a seperate page I suggest add it here...let me know on my talk I will bring in references etc and write a small summary of the condition in canines. benjicharlton (talk) 04:53, 23 August 2008 (UTC)

i agree with you matthew i have this problom and this did not give me any imformation.

I did have chiari type 1 and I thought that it went away!!! I have my headaches back and my balance has gotten even worse!!! Can you get the chiari back after having the sugery in 2002???? Please e-mail me at cremy012003@aol.com —Preceding unsigned comment added by 208.108.198.31 (talk) 14:32, 22 October 2007 (UTC)

Chiari cannot be cured. Decompression surgery is just a treatment method, that has variable results. Peoplesunionpro 09:13, 10 November 2007 (UTC)

CHIARI PATITSEN

HI,

MY NAME IS MAMIE ZERBE AND I HAVE CHIARI TYPE 1 MY DOCTOR TOLD ME THAT I NEE AN OPRATION AS SOON AS I CAN BECAUSE I HAVE HEADACHES 24/7 AND I ALSO HAVE NOSE BLEEDS TOO.

I AM REALLY SCARED OF THIS OPRATION BECAUSE I NEVER HAD THIS KIND BEFORE . IS THERE ANY INFORTATION BESIDES WHAT I FOUND ON THE INTERNET ? IS THERE A BOOK THAT I COULD GET FROM A LIBARARY TO READ UP ON THIS CHIARI TYPE 1 AT ALL ? YOU CAN CALL ME AT <removed phone number> I LIVE IN STRAUSSTOWN PA . PLEASE TELL ME MORE IF YOU CAN THANK YOU.

MAMIE ZERBE

Wikipedia is not a good place to ask questions like this. Try doing an internet search on the name of the disease and the words "support group" or "discussion". WhatamIdoing (talk) 03:27, 13 April 2008 (UTC)

Agreeing with the last person, you should go to the [[1]] and get advice from there. Chiari Malformation is a rare disease, and there is little information you could get from a library, if any. The ASAP organization also has a phone number that you can call to get information on specialists in your area, and they can send you a packet of information in the mail. - Cyborg Ninja (talk) 01:56, 17 July 2008 (UTC)

Dear Mamie Zerbe, I think Wikipedia is a perfectly wonderful place to start your search. In fact, ANYWHERE! is. You have to start somewhere and I commend you for beginning your search, even while you still have the headaches and pain. In other words, please just ignore the non-constructive sentence about "Wikipedia "not" ....." and take their suggestions for other searches. Since you got these suggestions for other searches here, obviously this IS a good place to start! Eventually, you will fine tune your search until you find what you need. Best, Anne Marie, LA —Preceding unsigned comment added by 192.42.240.245 (talk) 20:37, 23 January 2009 (UTC)

Society and Culture

Dateline NBC did a special on Chiari on Dec 14, 1999. It was the first time Chiari was mentioned in the mainstream, not this more recent citation. — Preceding unsigned comment added by Egthegreat (talk • contribs) 01:40, 14 December 2012 (UTC)

External links

Wikipedia's external links policy and the specific guidelines for medicine-related articles do not permit the inclusion of external links to non-encyclopedic material, particularly including: patient support groups, personal experience/survivor stories, internet chat boards, e-mail discussion groups, recruiters for clinical trials, healthcare providers, fundraisers, or similar pages.

Wikipedia is an encyclopedia, not an advertising opportunity or a support group for patients or their families. Please do not re-insert links that do not conform to the standard rules.

External links are not required in Wikipedia articles. They are permitted in limited numbers and in accordance with the policies linked above. If you want to include one or more external links in this article, please link directly to a webpage that provides detailed, encyclopedic information about the disease. I have improved several of the links here, so that they go to "information about ARM" pages instead of "please donate" pages. Thanks, WhatamIdoing (talk) 03:27, 13 April 2008 (UTC)

Yes. For World Arnold Chiari Malformation Association, Do not Change it. The Acuate link is [Wacma.org]. S.T.H. ( P/T/C ) 17:16, 14 May 2008 (UTC)

Here is the text from the "acuate" link you added:

"WACMA is a nonprofit organization through which parents and friends can support the music department at Central High School. Our board coordinates volunteer work, raises funds and acts as an advocate for the arts. Membership in the West Allis Central Music Association includes all parents and/or legal guardians of student members of the West Allis Central High School Bands, Choirs and Orchestras. Officers consist of a President, Secretary, Treasure and Parent Representatives and Directors from each musical organization. We welcome your support and invite you to attend board meetings held in the band room, on the first Tuesday of each month at 6:00 P.M. Our next meeting is April 3, 2007 at 6:00 P.M."

Now if you can possibly explain what the West Allis Central Music Association has to do with Arnold-Chiari malformation, then I'm ready to listen. WhatamIdoing (talk) 22:38, 15 May 2008 (UTC)

New links

I added the following:

• 2008, May 9 The kid who can't sleep CNN.com
• 2008, May 9 Boy Hasn't Slept In 3 Years local6.com
• 2008, May 9 Rare condition doesn't let St. Petersburg kid sleep Baynews9.com

71.191.3.39 (talk) 12:06, 9 May 2008 (UTC)

I dont think these should be in the article. S. T. H. 23:10, 15 May 2008 (UTC)

You can delete external links from an article if you think that they are inappropriate. If you can point to a reason in WP:ELNO or WP:MEDMOS#External links that supports your personal opinion, or you can explain your reasons well enough to convince other editors, then they'll actually stay deleted. WhatamIdoing (talk) 02:37, 17 May 2008 (UTC)

These would about insomnia not ACM. It May be a side effect but not a ACM link. Trees Rock ^{Plant A Tree!} 15:09, 17 May 2008 (UTC)

I think it should be included, possibly as backup in a Symptoms section. The article states the insomnia is due to the boy's Chiari malformation, and this is important information for not only patients to be aware of, but doctors as well. - Cyborg Ninja (talk) 02:04, 17 July 2008 (UTC)

(Apparently) a single patient has this symptom, so we need three different links about it? WhatamIdoing (talk) 05:43, 17 July 2008 (UTC)

Lacking

This article is lacking in information. While I personally find it a little annoying to hear this from other Wikipedia visitors and think that everyone should contribute, I do not know enough about Chiari malformation to do so without possibly giving incorrect info. I contribute to many other articles, including the syringomyelia article. I and many others would highly appreciate it if someone extended this article, rather than citing useless Wikipedia guidelines. - Cyborg Ninja (talk) 02:08, 17 July 2008 (UTC)

You should add associated conditions to include tethered cord, ehlers-danlos syndrome, chronic fatigue syndrome, spinal bifida, and dysautonomia. Also talk about the different types of chiari. the different types of surgeries performed, ie with or without dura, with or without lamenectomy, etc.
i have some informative websites to add:
http://www.chiariconnectioninternational.com/
http://www.chiari-syringo-news.com/
http://www.chiaritvspecial.com/

new

im very new to this my brother is in the hospital right now on life support and the doctors are thinking this is the reason so any info you can provide will be greatly appreciated my name is Donetta Clark my e-mail is djclark76108@yahoo.com thank you once again —Preceding unsigned comment added by 12.7.62.73 (talk) 17:06, 4 April 2009 (UTC)

Spina Bifida

There is no mention of Spina Bifida here even though Chiari is very common in people with SB. Roger (talk) 21:11, 15 October 2009 (UTC)

Notable persons

I have removed the name 'Maggie Watts (Laurens Mum)' from the list of notable people with this condition. As a search on wikipedia finds no mention of any person named Lauren Watts, I can only assume that both Maggie and Lauren Watts (?) are normal citizens who have been listed on this page. Not only does this go against the definition of 'Notable persons', I cannot help but feel it malicious - are these people okay with this condition? Do they want it to be recognised? Would they be upset by this? Really, we have no clue. With the undue informality and inappropriate nature of this inclusion, I have removed it. If anyone could explain this to me, it'd be fine to add it again. --94.192.80.191 (talk) 16:05, 14 February 2010 (UTC)

You're way overthinking this - its just plain simple vandalism. Revert it and move on - there's no need to launch a huge discussion about it. BTW please post new topics to the bottom of the page. Roger (talk) 16:36, 14 February 2010 (UTC)

Actually Chiari Malformation is a form of SB.There are 4 different types of Chiari 1 which is the most common and it is the one that people can live with their whole life with out having any symptoms,there is type 2 which is less common and is actually called SB where the spinal cord is outside the body and you are born this way,then there is 3and 4 which are almost all the time fatal and the infant does not live past birth. —Preceding unsigned comment added by 97.104.142.38 (talk) 14:59, 22 October 2010 (UTC)

Brain Sagging and Pseudo-Chiari Malformation

The displacement of the cerebellar tonsils into the spinal canal may be mistaken for a Chiari I malformation, and some patients with spontaneous intracranial hypotension have undergone decompressive posterior fossa surgery.