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Inspire (company)

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  • Comment: Passing mentions in reliable sources can be used to verify content in the draft, but do not serve to demonstrate topic notability. North America1000 22:23, 12 May 2016 (UTC)
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Inspire is an Arlington, VA-based company that builds and manages online support groups for patients and caregivers, and connects patients to life science companies for the purpose of research.

Overview

Founded in 2005, the company serves hundreds of thousands of patients and caregivers in several hundred online support groups.[citation needed] These groups are are mostly organized around a single condition, such as psoriasis, ovarian cancer, or lung cancer.

Online health communities like Inspire are referenced as components of the empowered patient, or e-patient movement. [1][2]

History

Brian Loew, Amir Lewkowicz and Walter Wlodarczyk, founded Inspire. It was first known as ClinicaHealth.

As of Summer 2016, the Inspire community had about 850,000 registered members, more than 275,000 of whom are affected by cancer. [3] Inspire had about 80,000 members in 2008. [4]

Partnerships with nonprofit advocacy organizations

Inspire partners with multiple nonprofit patient advocacy organizations, such as National Osteoporosis Foundation, National Psoriasis Foundation, Arthritis Foundation, Cancer Research Institute, American Lung Association, Ovarian Cancer Research Fund Alliance, Genetic Alliance, Kidney Cancer Association, Scleroderma Foundation, Alzheimer's Foundation of America, Tuberous Sclerosis Alliance, Men's Health Network, WomenHeart: The National Coalition for Women with Heart Disease, ThyCa: Thyroid Cancer Survivors' Association, Bladder Cancer Advocacy Network, American Liver Foundation, Encephalitis Global, Neurofibromatosis Network, American Sexual Health Association, Ehlers-Danlos Society, and the ALS Association to provide online communities for the nonprofit organizations. [5][6][failed verification]

Products and services

Inspire’s online communities are services provided free to the public.[citation needed] Inspire generates company revenue from market research and promotional services to pharmaceutical companies. Inspire’s market research services include online surveys, user-generated content analysis, and moderated online private research communities.[7]

Examples of promotional projects that Inspire would provide on behalf of a pharmaceutical client include branded or unbranded banner ads that Inspire serves in its online communities and the delivery of targeted, permission-based emails to community members.

Research projects

Pharmaceutical companies have worked with Inspire on research projects that focus on rare disease populations or populations of patients who have advanced disease, such as metastatic lung cancer.[8] In 2015, members of Inspire's lung cancer group self-organized and submitted a request that helped changed treatment guidelines from the National Comprehensive Cancer Network (NCCN).[9]

Awards

Inspire has won several Digital Health Awards[citation needed], including a silver award in the "Forum/Message Board" category in 2013.[10]

References