Talk:Cerebral palsy/Archive 1
This is an archive of past discussions about Cerebral palsy. Do not edit the contents of this page. If you wish to start a new discussion or revive an old one, please do so on the current talk page. |
Archive 1 | Archive 2 |
I would like to provide an update for the page about cerebral palsy
I would like to offer my services to provide an update for the page about Cerebral Palsy. I have current epidemiological data, more current information about etiologies and hypotheses about etiologies. Please let me know how to go about submitting a draft for review. I also welcome visitors to our website: www.ucpresearch.org and I welcome questions or comments. Mindy Aisen MD, United Cerebral Palsy Research and Educational Foundation maisen@ucpresearch.org —Preceding unsigned comment added by 69.140.125.125 (talk • contribs) 22:37, 10 May 2007 (UTC)
Cerebral Palsy or Cerebral Pares?
I have heard that CP means either Cerebral Palsy or Cerebral Pares. What is the difference between these two terms? I'm not a native English speaker.—Preceding unsigned comment added by 62.78.185.199 (talk • contribs) 11:56, 12 August 2005 (UTC)
- There are no such things as "cerebral pares" in the English language. The correct term for CP is Cerebral palsy. The closest thing to "pares" would be paresis, which is a state of semi-paralysis. Mortek MC 20:36, 2 October 2005 (UTC)
- Cerebral Palsy is called Cerebral Pares in Swedish. ("cerebral parese" which is what it's called in my native language, Norwegian). As mentioned, "palsy" is the English term.—Preceding unsigned comment added by 85.19.140.9 (talk • contribs) 13:46, 27 December 2005 (UTC)
Causes of cerebral palsy numbers wrong
Causes of Cerebral Palsy are listed as 75% during pregnancy, 5% childbirth, 15% childhood. Could these numbers be corrected so they add up to 100% please? —Preceding unsigned comment added by Mrchak (talk • contribs) 19:09, 17 April 2007 (UTC)
Not only do the %'s not add up, the summery page of webmd used as a "source" for this information does not list any percentages of causes. The source is unrelated to the information presented. —Preceding unsigned comment added by 75.37.47.104 (talk) 07:44, 7 March 2010 (UTC)
Can cerebral palsy affect verbal skills?
Can cerebral palsy effect your verbal skills? I know someone with CP, and they can't walk or talk. Someone also told me that his therapist said that the person with CP has a mind of a 3 year old, and the man with cp is 34.—Preceding unsigned comment added by 69.76.178.200 (talk • contribs) 18:59, 9 May 2006 (UTC)
- Yes, CP can affect your verbal skills. Personally, I would doubt the mental retardation diagnosis, since the man can't talk, even though CP can cause learning difficulty. —Preceding unsigned comment added by Frumfree (talk • contribs) 21:39, 6 June 2006 (UTC)
- No, CP is in NO way connected with mental retardation, and if a therapist told you that they are ignorant of the issue at hand. CP can lead to social deficits, which can lead to poor performance at school and lack of motivation. These can secondarily lead to a lessened IQ, but in no way does CP do this primarily.—Preceding unsigned comment added by 74.136.10.240 (talk • contribs) 00:51, 19 February 2007 (UTC)
- CP simply refers to a group of conditions that affect motor movement due to damage to the central nervous system. This does not necessarily mean that there will be mental retardation or not. However, given brain damage in the motor areas of the brain, damage in other areas is far more likely. In this way, CP is associated with mental retardation in a proportion of cases, but not all. Another way that CP can cause developmental retardation is through the lack of enrichment to the affected person's environment - as you might imagine, patients with any physical disability get shunned and thus might end up with less learning opportunities. —Preceding unsigned comment added by 24.97.35.51 (talk • contribs) 14:12, 12 March 2007 (UTC)
Topography or Typography?
Is this correct usage of 'typography'?:
"Spastic cerebral palsy is further classified by topography, dependent on the region of the body affected. These typography classifications include: (1) hemiplegia (one side being more affected than the other)"—Preceding unsigned comment added by 67.112.120.226 (talk • contribs) 11:59, 28 June 2006 (UTC)
- I think from looking at the entries for Topography and Typography neither word is being used in anything like the correct context! TOPography relates to geography and TYPography refers to classification of fonts. lewbrown—Preceding unsigned comment added by 164.11.204.52 (talk • contribs) 10:37, 30 October 2006 (UTC)
- True lebrown, but the word topography can also be used in indicating a part of the body. Broom —Preceding unsigned comment added by 137.120.29.81 (talk • contribs) 13:02, 20 November 2006 (UTC)
Mental Retardation
There is absolutely NO WAY to KNOW the accuracy of the statement "60% of people with CP have mental retardation" since people often have speech difficulties and cannot adequately convey their intelligence; the vast majority have never been tested in any way. Able-bodied people MAKE ASSUMPTIONS based on appearances and/or speech impairments. Thus, people are not even given a CHANCE, and are never educated or even interacted with in a way that would given them the opportunities to develop what they have. This statement is DUBIOUS in the extreme. —Preceding unsigned comment added by 64.12.116.130 (talk • contribs) 03:53, 6 October 2006 (UTC)
- Absolute nonsense. The author clearly outlines that the mental retardation is related to damage in various parts of the brain. If the brain is damaged, the neurons cannot repair hence it is permanent and therefore it is easy to say from a CT/MRI whether or not someone is more likely to be or will be mentally retarded. If they can't convey language so what, they can still write, see and hear and so should adapt like plenty of able'd blind and deaf people around the world. If these senses are still intact and the child still shows developmental delay there is a high index of suspicion that either they have not received adequate school support or they are indeed mentally retarded. Why do the public seem to think they know better than Doctors, it stuns me.—Preceding unsigned comment added by 82.31.184.39 (talk • contribs) 23:33, 14 December 2006 (UTC)
- Damage to the cortex that results in mental retardation is SEPERATE from CP. CP is STRICTLY a motor/sensory deficit. If a lessened IQ is observed in a person with CP it is NOT because of the primary condition, but rather from lack of social support. Damage to the cerebrum that results in mental retardation falls under a DIFFERENT classification than CP. The two can occur at the same time, but this does not mean that they are the same thing. One can have Parkinson's and Alzheimers at the same time, one can have Pneumonia and Herpes at the same time... but it doesn't mean they are the same or related. The above statement "they can still write, see and hear" is complete nonsense, the ability to see, to hear, and to write are all also impaired by CP and "being able to adapt" isn't always possible without proper social support. In these cases these individuals may be, and often are percieved INCORRECTLY as being mentally challenged, when in fact they are not. And this isn't a member of the "public" thinking he knows better than a doctor, this is a second year medical student saying that he knows better than you.—Preceding unsigned comment added by 74.136.10.240 (talk • contribs) 00:56, 19 February 2007 (UTC)
- May I state the obvious and say this article needs clean-up? Umalee 19:55, 1 January 2007 (UTC)
- Being a second-year medical student has nothing to do with this article. The extremely high prevalence of mental impairment among people with CP is definitely worth noting, no? No need to explain it away with pet theories about socialization. Just as depression is mentioned in the article on anxiety disorders. Why do you think that is? Because there is a very high prevalence of the two conditions together. Anyway, the article does really need a clean-up regardless.—Preceding unsigned comment added by 67.82.98.53 (talk • contribs) 14:29, 15 March 2007 (UTC)
- The two occuring at the same time is extremely common. As such, it is a bit pedantic to get on your soap box about this issue - especially seeing as you mistakenly left sensory in your desciption of CP above as well! ('Palsy' refers to motor deficit.) Essentially, you are correct in saying that CP only describes that there is motor loss involved in the patients condition. However, most people (medicos included) assume that there is a great likelihood of other problems being present, and as such, it is entirely appropriate for wikipedia to address those problems in the article. Dantendo 09:16, 26 March 2007 (UTC)
- As a person with CP, I have to agree. The secondary conditions are very common and should be included. I am a junior in college and suffer from several of them (ie. I have a learning disability)—Preceding unsigned comment added by You05 (talk • contribs) 04:43, 19 April 2007 (UTC)
- For clarification on almost ALL of these issues, go to http://www.matheny.org/. It also provides insight into Spina Bifida and Lesch-Nyhan disease. Since Matheny has over one hundred patients, they know what they're talking about—Preceding unsigned comment added by 4.249.21.108 (talk • contribs) 18:01, 13 April 2007 (UTC)
- i do find this article very offensive and inaccurate.You discussed the worst case senario with CP children and did not discuss what the cp individual can do. I work for an RDA and know many people with CP and am extremely disgusted with Mental Retardation comments.I am usually quite pleased with wiki and regularly look up information on this site but after reading this article im unsure to support your site anymore.I am sure you will be rectifying the page promtly. —Preceding unsigned comment added by 125.237.213.6 (talk • contribs) 06:05, 1 July 2007 (UTC)
- I find the article very appropriate. When reading about any disease you would never assume that any patient would fit all criteria. The same is true for CP - one should assume in this case that affected people will range from almost completely normal in terms of their physical abilities to some with severe disability. You should assume the same thing with concurrent learning disabilities. Some patients I have seen have been severely disabled in this regard, while some doctors I know have mild CP with spastic hemiparesis.Dantendo 06:21, 8 August 2007 (UTC)
- Um, has it ever occurred to people that when someone has mental retardation as the *primary condition*, that is going to affect their motor skills, so they developed CP symptoms as a result of the same condition that caused the retardation?—Preceding unsigned comment added by 24.215.80.8 (talk • contribs) 11:50, 8 July 2007 (UTC)
- Good question! However, CP is the primary diagnosis here - generally we can localise areas of the brain that are affected and are causing the motor problems, so you would probably say that these are 'primary' deficits. If they are mentally retarded as well, you could see this as either primary (from associated areas of the brain being damaged as well) or secondary (from less access to learning opportunities). It is important to realise that the motor loss does not necessitate lower mental ability, but that the two problems can be (and often are) associatedDantendo 06:21, 8 August 2007 (UTC)
- I added incidence of various comorbidities (including mental retardation, found at 31%) from the SCPE multi-country register database. Because of that, I'm deleting the reference that was previously there, which listed incidence of mental retardation from Norway only (also at 31%). I wanted to paste it here though so that the reference wasn't lost:
- Good question! However, CP is the primary diagnosis here - generally we can localise areas of the brain that are affected and are causing the motor problems, so you would probably say that these are 'primary' deficits. If they are mentally retarded as well, you could see this as either primary (from associated areas of the brain being damaged as well) or secondary (from less access to learning opportunities). It is important to realise that the motor loss does not necessitate lower mental ability, but that the two problems can be (and often are) associatedDantendo 06:21, 8 August 2007 (UTC)
- Um, has it ever occurred to people that when someone has mental retardation as the *primary condition*, that is going to affect their motor skills, so they developed CP symptoms as a result of the same condition that caused the retardation?—Preceding unsigned comment added by 24.215.80.8 (talk • contribs) 11:50, 8 July 2007 (UTC)
- I find the article very appropriate. When reading about any disease you would never assume that any patient would fit all criteria. The same is true for CP - one should assume in this case that affected people will range from almost completely normal in terms of their physical abilities to some with severe disability. You should assume the same thing with concurrent learning disabilities. Some patients I have seen have been severely disabled in this regard, while some doctors I know have mild CP with spastic hemiparesis.Dantendo 06:21, 8 August 2007 (UTC)
- i do find this article very offensive and inaccurate.You discussed the worst case senario with CP children and did not discuss what the cp individual can do. I work for an RDA and know many people with CP and am extremely disgusted with Mental Retardation comments.I am usually quite pleased with wiki and regularly look up information on this site but after reading this article im unsure to support your site anymore.I am sure you will be rectifying the page promtly. —Preceding unsigned comment added by 125.237.213.6 (talk • contribs) 06:05, 1 July 2007 (UTC)
- For clarification on almost ALL of these issues, go to http://www.matheny.org/. It also provides insight into Spina Bifida and Lesch-Nyhan disease. Since Matheny has over one hundred patients, they know what they're talking about—Preceding unsigned comment added by 4.249.21.108 (talk • contribs) 18:01, 13 April 2007 (UTC)
- As a person with CP, I have to agree. The secondary conditions are very common and should be included. I am a junior in college and suffer from several of them (ie. I have a learning disability)—Preceding unsigned comment added by You05 (talk • contribs) 04:43, 19 April 2007 (UTC)
- The two occuring at the same time is extremely common. As such, it is a bit pedantic to get on your soap box about this issue - especially seeing as you mistakenly left sensory in your desciption of CP above as well! ('Palsy' refers to motor deficit.) Essentially, you are correct in saying that CP only describes that there is motor loss involved in the patients condition. However, most people (medicos included) assume that there is a great likelihood of other problems being present, and as such, it is entirely appropriate for wikipedia to address those problems in the article. Dantendo 09:16, 26 March 2007 (UTC)
- Being a second-year medical student has nothing to do with this article. The extremely high prevalence of mental impairment among people with CP is definitely worth noting, no? No need to explain it away with pet theories about socialization. Just as depression is mentioned in the article on anxiety disorders. Why do you think that is? Because there is a very high prevalence of the two conditions together. Anyway, the article does really need a clean-up regardless.—Preceding unsigned comment added by 67.82.98.53 (talk • contribs) 14:29, 15 March 2007 (UTC)
- May I state the obvious and say this article needs clean-up? Umalee 19:55, 1 January 2007 (UTC)
- Damage to the cortex that results in mental retardation is SEPERATE from CP. CP is STRICTLY a motor/sensory deficit. If a lessened IQ is observed in a person with CP it is NOT because of the primary condition, but rather from lack of social support. Damage to the cerebrum that results in mental retardation falls under a DIFFERENT classification than CP. The two can occur at the same time, but this does not mean that they are the same thing. One can have Parkinson's and Alzheimers at the same time, one can have Pneumonia and Herpes at the same time... but it doesn't mean they are the same or related. The above statement "they can still write, see and hear" is complete nonsense, the ability to see, to hear, and to write are all also impaired by CP and "being able to adapt" isn't always possible without proper social support. In these cases these individuals may be, and often are percieved INCORRECTLY as being mentally challenged, when in fact they are not. And this isn't a member of the "public" thinking he knows better than a doctor, this is a second year medical student saying that he knows better than you.—Preceding unsigned comment added by 74.136.10.240 (talk • contribs) 00:56, 19 February 2007 (UTC)
- One recent study found mental retardation in 31% of children diagnosed with CP.[1]
- ===References===
{{cite journal}}
: Cite journal requires |journal=
(help)CS1 maint: multiple names: authors list (link)
Childhood disorder that lasts a lifetime
We would not consider Deaf individuals or those with blindness since birth to have a childhood disease/disorder/disability. And since CP lasts into adulthood, it seems very inaccurate to call it a "common childhood physical disability."
Lastly, "common" is inspecific language. I will make both changes. —Preceding unsigned comment added by 69.81.150.246 (talk • contribs) 00:42, 27 July 2006 (UTC)
Pentaplegia
This term is used in the article; the only reference I was able to find to it in Google is the article itself, and several dictionaries don't contain it. If it is a word, I apologize, but if it isn't it should be replaced with a description (i.e. paralysis of upper and lower limbs and of the face, for example). I'd fix it, but I can't verify that it isn't one. Please fix it if you're more knowledgeable than I! -Lakmiseiru 04:16, 9 January 2007 (UTC)
- Problem solved. I deleted it. --Umalee 17:49, 24 January 2007 (UTC)
- I did a simple Google search for "pentaplegia" and it turned up 1,710 matches. It was defined on the first match. Dictionaries typically do not list obscure medical terms. Seems like a legitimate word to me. Perhaps you misspelled it when searching in google? Or perhaps I misunderstood your point?Dculberson 18:46, 4 March 2007 (UTC)
- Either a definition in the text, or a link to the definition, would seem to be appropriate here, as pentaplegia is not a term commonly found or understood. --Cvsheid 00:49, 4 July 2007 (UTC)
famous Australian comedian with CP
In Australia we have a very popular comedian who goes by the stage name of Steady Eddy, he is listed on Wikipedia. He has amused and outraged both the able bodied and the disabled. His comic style 'takes the piss' (to use an Aussie term) out of people with disabilities. I guess its OK for people with disabilities to make jokes about their problem but would be seen in poor taste if done by an able bodied person. Anyway I think he is pretty funny and its a bit of an Aussie thing to have a laugh at your own situation, no matter how dire. Basspick 12:03, 7 February 2007 (UTC)
is it true that people can die from cerebral palsy?
is it true that people can die from cerebral palsy?—Preceding unsigned comment added by 24.97.35.51 (talk • contribs) 14:12, 12 March 2007 (UTC)
- People do not die from CP. If they die it is from a secondary condition that may be intensified in severity by the person's CP. —Preceding unsigned comment added by You05 (talk • contribs) 04:30, 29 March 2007 (UTC)
'r'?
are there supposed to be four 'r's following the word Ataxic in the beginning of the article?—Preceding unsigned comment added by 85.156.128.19 (talk • contribs) 13:20, 18 March 2007 (UTC)
Differential Diagnosis
Hi. Im wondering if anyone could add this aspect of Cerebral palsy to the Wiki. Im searching for information about it but im having a hard time finding it. As natural i turned my eyes to wikipedia to see if i could get any wiser, but the wiki leaks this theme.
I know from my turns at the hospital that some spinal cord tumors can have similar symptoms as Cerebral Palsy and some neuromuscular illness can also have the Cerebral Palsy pattern.
Anyone that can set up an article? —The preceding unsigned comment was added by KingOfSofa (talk • contribs) 13:12, 22 March 2007 (UTC).
Pronunciation
I am not going to vandalize the article to explain this, but it is a HUGE pet peeve of mine that the standard pronunciation of the term "cerebral palsy" (in the US and Canada, at least) is "SEH-reh-bral palsy", instead of "seh-REE-bral palsy", this despite the standard, recognized pronunciation of the word "cerebral" in all other contexts.
Let it be known! I am done here.
-- Zweifel 08:12, 10 April 2007 (UTC)
- Wouldn't it make sense to include BOTH pronounciation alternatives? Cvsheid 00:54, 4 July 2007 (UTC)
- That pronunciation thing really annoys me too. —Preceding unsigned comment added by 67.42.233.16 (talk) 00:50, 6 September 2008 (UTC)
Plagiarism & Sources
This article copies, word for word, several sources, including one that shows up on the first page of Google.
Several of the sources appear to be rather unreliable, since they have grammaticla errors and appear very unprofessional. —The preceding unsigned comment was added by Tetty2 (talk • contribs) 22:52, 28 April 2007 (UTC).
- I deleted several passages that were plagiarized verbatim from Cerebral Palsy: A guide for care. One section, in "Terms to use," I replaced with a properly cited block quote, one, in "Prognosis" I did not. I will come back within the week to add prognosis info from the Gross Motor Function Classification. CerebralMom 17:00, 5 July 2007 (UTC)
Question?
Is cerebral palsy hereditary?—Preceding unsigned comment added by 69.76.179.199 (talk • contribs) 19:13, 1 May 2007 (UTC)
- short answer : NO, however there are some extremely rare circumstances where blood type incompadability can cause a predisposition to CP (i believe it's some sort of incompadibe blood type disorder. for the life of me i can remember where i read it, MAYBE pubmed?)
- not near my library. no idea where i would track it all down.
- Uppitycrip 20:06, 31 May 2007 (UTC)
- JAMA lists the following as risk factors for CP:
- Infection of the mother, including rubella (German measles), during pregnancy
- Premature birth—premature babies have immature brain tissue that is susceptible to injury from low oxygen or low blood sugar
- Inadequate oxygen or blood flow to the brain in the mother's womb
- Rh disease—mother and fetus have incompatible blood proteins; Rh disease can be prevented by immunization of the mother at appropriate times
- Congenital (birth) defects and genetic (inherited) factors
- Head trauma (including shaken baby syndrome)
- Severe jaundice (yellowing) in the newborn baby—a buildup of chemicals that may harm an infant's developing brain
Cleanup tag removal?
I'm going to suggest we remove the cleanup tag from this article. It seems to be well written, formatted, and linked correctly now. I have made a note in my diary to remove this tag in 2 weeks. If anyone has any objections, please feel free to reply here. --Zaf(t) 05:02, 12 May 2007 (UTC)
This article stills needs a lot of work. I am no expert on the condition, but the grammar is often bad and sentences confusing. Many statements don't make any sense.JohnC (talk) 19:45, 6 April 2008 (UTC)
Redundant
spastic quadriplegia (Whole body affected; all four limbs affected equally). Some children with quadriplegia also suffer from hemiparetic tremors; an uncontrollable shaking that affects the limbs on one side of the body and impairs normal movement. A common problem with children suffering from quadriplegia is fluid buildup. Diuretics and steroids are medications administered to decrease any buildup of fluid in the spine that is caused by leakage from dead cells. Hardened feces in a quadriplegia patient are important to monitor because it can cause high blood pressure. Autonomic dysreflexia can be caused by hardened feces, urinary infections, and other problems, resulting in the overreaction of the nervous system and can result in high blood pressure, heart attacks, and strokes. Blockage of tubes inserted into the body to drain or enter fluids also needs to be monitored to prevent autonomic dysreflexia in quadriplegia. The proper functioning of the digestive system needs to be monitored as well.
could be fixed maybe timmer 03:59, 15 May 2007 (UTC)
- There are significant differences between spinal cord quadriplegia and Cerebral Palsy quadripledgia. Some of these issues are people with cp can feel and do not have a risk for autonomic dyreflexia. most of this info is used for spinal cord injury. NOT severe CP.
- While autonomic dysreflexia is not usually seen in CP, this is not to say that constipation andobstipation are not problems, which in severe cases can lead to bowel obstruction. There is a difference in pathophysiology between CP,and spinal cord injury which makes for the abscence of autonomic dysreflexia in CP.Bwthemoose 22:14, 17 June 2007 (UTC)
- redundancy in "sensory impairment, vision and hearing impairment" so "vision and hearing impairment" were removed from last sentence in SIGNS AND SYMPTOMS 198.133.139.5 11:03, 26 July 2007 (UTC)
Pronunciation
"pronounciation:sair-a-bral pal-z"
- Is this the British pronunciation because I'm pretty sure the American pronunciation would be "se-reebral pal-zee"... Yonatan talk 00:24, 20 May 2007 (UTC)
Both pronounciations are correct, could be a different like a dialect. I have cp and use both interchangeablyUppitycrip 20:02, 31 May 2007 (UTC)
The statement,"Overall, CP ranks among the most costly congenital conditions in the world to manage effectively." is 1)unsubstantiated, and 2)pejorative, since it seems to make the cost of their care an issue in their overall treatment. This probably wasn't intentional. Perhaps a list of the yearly or one time costs
of various congenital conditions would help.Bwthemoose 20:01, 3 June 2007 (UTC)
Tone warning
I've added the tone tag to one section, specifically because of use of the phrase, "You must remember" and for the superfluous and incorrect use of dashes. The way most of this bit reads reminds me of how a mother of a CP child educates other people about their child's condition, not how an encyclopedia educates the masses. And where are all of the citations? That certainly doesn't help the cause, almost oas if someone is simply stating, "It's so because I totally know a person with CP and this is what's wrong, so just believe me because I know and you don't." You'd think an article on a medical condition would be better referenced than this. --ScreaminEagle 18:10, 3 July 2007 (UTC)
- I've attempted to clean up the Misconceptions section to have a neutral tone. I've also removed the tone warning. Agent Conundrum 08:07, 8 August 2007 (UTC)
- thanks very much
- i noticed that the article concentrate mainly - as regard presentation- upon bone deformities !
- whit about other manifestations ?
- whit about eary diagnosis in infant?
- lastly i hope to intoduce laguage review and alphabetical correction
- with my best wishes
- dr. adel m.shokr
- pediatricin
- ashokr59@hotmail.com—Preceding unsigned comment added by 62.135.106.53 (talk • contribs) 09:53, 30 July 2007 (UTC)
- I assume you are talking about the 'misconceptions' section.... I too think that the tone was a little too didactic. I get the impression that the author had a bit of a bee in his/her bonnet about people assuming that people with CP will be mentally retarded. This is justified - there probably are too many people making this assumption - but the fact is that in many badly affected people there is concommitant learning disability. I think that this section can probably be rewritten to address this (in fact, I think that other sections of this article do a very good job in addressing this and this section may not even be needed....Dantendo 06:30, 8 August 2007 (UTC)
External links
I've just deleted the link to the "CP video blog," a site with currently just a handful of video blogs and no "about us" or contact information.
I am more than happy to come back at a later date and add some links to reputable, unbiased sources of clinical information on CP (it's on my "to do" list after some higher priority tasks on the CP page). I do not think it appropriate to list such minor resources, particularly ones with strong commercial ties, until there are also a handful of reputable, non-commercial sites listed.
CerebralMom 04:35, 12 August 2007 (UTC)
I re-added the link to UCP, also including a brief intro to who UCP is and the info they have on their site.
I just found the time when the links were deleted in favor of the Open Directory link per MEDMOS. While I understand the stated guideline and rationale to "avoid External Link farms," the Open Directory link for CP is ... not as helpful as it could be for people who are looking for more information on CP. While the Open Directory page for other conditions may be better, in the case of CP's page, of the dozen or so links given for CP, several are non-attributed websites, several are commercial sites, and several are private or small websites that have not been updated in years. In this case, I don't think that the Open Directory page is complete enough to be a substitute for a small listing of authoritative, non-biased, non-commercial sources of information on CP. CerebralMom 06:17, 12 August 2007 (UTC)
I believe the above info on the UCP site and the info given on the CP page for that link fits the Wikipedia External Links guidelines, which state: "If you link to another website, you should give your reader a good summary of the site's contents, and the reasons why this specific website is relevant to the article in question."
Miraculously, the link to the "CP Video Blog" has appeared again.
I have deleted it again, for the following reasons:
- The website itself is unattributed; there is no “about us” page nor contact information.
- The website does not appear to conform to the Wikipedia External links guidelines
- The doctor who is the subject of most of the video blogs is Zev Gershon, “a physician and an attorney, concentrating in medical malpractice, specifically medical malpractice involving cerebral palsy cases.”
CerebralMom 06:49, 12 August 2007 (UTC)
Treatment
I've deleted the reference given for the biofeedback entry, because the article cited does not show positive effects of biofeedback on people with CP. From the article's abstract:
The purpose of this study was to determine the effects of biofeedback-assisted relaxation training on self-reported pain and muscle tension in 3 adults with CP using a multiple baseline design across subjects. Two of 3 participants reported decreases in their pain experiences posttreatment. Their subjective reports, however, did not correspond with physiological changes. Complications in the use of progressive relaxation exercises and EMG biofeedback equipment are described and suggestions for future research provided.[1]
CerebralMom 12:07, 12 August 2007 (UTC)
References
- ^ Engel JM, Jensen MP, Schwartz L (2004). "Outcome of biofeedback-assisted relaxation for pain in adults with cerebral palsy: preliminary findings". Applied psychophysiology and biofeedback. 29 (2): 135–40. PMID 15208976.
{{cite journal}}
: CS1 maint: multiple names: authors list (link)
CerebralMom 11:56, 12 August 2007 (UTC)
Disease vs. Disorder
The very first sentence in this article is wrong. CP is a birth defect, NOT a disease. All my life, I've heard that what I have is a birth defect, and I've just confirmed this @ http://www.scope.org.uk/information/cp.shtml, which states "Cerebral palsy (cp) is not a disease or an illness. It is the description of a physical impairment that affects movement. The movement problems vary from barely noticeable to extremely severe. No two people with cp are the same; it is as individual as people themselves."--John R. Sellers 19:15, 19 August 2007 (UTC)
GOOD ARTICLE 1 MISTAKE
I AM IN AGREENCE WITH MR. J.R. SELLERS CP IS NOT A DISEASE BUT A DISORDER OR AS I LIKE TO CALL IT A CONDITION. I AM ALSO WONDERING WHY NOTHING WAS SAID ABOUT IT NOT BEING HEREDITARY. I HAVE CP & I HAVE LIVE A GOOD LIFE THUS FAR; MADE IT THROUGH HIGH SCHOOL, GOT A COLLEGE DEGREE, HELD A JOB & LIVED ON MY OWN PER NEAR 18 YEARS NOW. PRETTY GOOD I'D SAY FOR SOMEONE-WHO WAY BACK WHEN-WOULD HAVE BEEN LOCKED UP IN A 'DISAPPOINTMENTS ROOM' CHANGE A COUPLE THINGS & THE ARTICLE WILL BE FINE.--Kae-linn 19:35, 27 August 2007 (UTC)
Jim Ross
I noticed he is listed as having CP and clicked through to his wiki entry. It says there however that he has Bell's Palsy. Forgive me if I'm misunderstanding CP and BellsP is some kind of type of it, but I didn't think they were related as Bells is a facial palsy. Can someone confirm if he does have CP and update the article accordingly if he does not? Thanks Sassf 02:04, 28 October 2007 (UTC)
- I guess he was taken off the list, but in case anything like this ever comes up again: You are correct. Bell's Palsy is a different disorder. It is a 'palsy' but it is not a sub-type of CP. (And for the record, yes, Jim Ross has a diagnosis of Bell's Palsy.) —Preceding unsigned comment added by 67.42.233.16 (talk) 00:34, 6 September 2008 (UTC)
Electro-fetal monitoring
I've removed part of the introduction:
(such as electro-fetal monitoring)
This was listed as one of the "medical advances" that helped reduce the amount of babies with CP. I made a relatively thorough google search (without pages that included lines that are also in the wikipedia article, therefore removing those that just cite this article). This came up with no support for the idea, although I didn't research electro-fetal monitoring, and know nothing about it. However, I did find this page [1], with I am now using as a reference.
This page [2] from Scope's website, gives some basic info on the subject (How prevalent is cerebral palsy? section) but I thought it was too specific to fit in the intro.
Thanks, Drum guy (talk) 22:13, 8 December 2007 (UTC)
I've removed an unsourced sentence
I've removed this sentence from the introduction:
Eighty percent of causes are unknown; for the small number where cause is known this can include infection, malnutrition, and/or head trauma in very early childhood.
It's been tagged as needing citation since July this year, and the introduction says that CP is non-contagious, so I'm not sure how a cause can be infection - although I have absolutely no specific knowledge. I've left the {{fact}} tag on for the earlier part of the paragraph.
There is some info on Scope's website (in the "How does it happen?" section) and in the other references. This could be used to write a replacement sentence.
Thanks, Drum guy (talk) 23:06, 8 December 2007 (UTC)
Need category
Need category: Category:Cerebral palsy. Badagnani (talk) 20:11, 24 December 2007 (UTC)
The information in this article: Epsom salt can prevent cerebral palsy: U.S. study should be added to the article. Ariel. (talk) 14:09, 1 February 2008 (UTC)
COI?
This has been removed from the article alleging COI as the editor seems to be the author of the paper:
After years of epidemiological study at Liverpool University, there is increasing support for the hypothesis that many cases of cerebral palsy, and other defects, are caused by the death, in very early pregnancy, of an identical twin in cases where they share the same chorion. Not all identical twins share the same blood supply, but if they do, and one dies, the suggestion is that this damages the development of the surviving embryo. It is common knowledge amongst midwifery that a tiny dead foetus (fetus papyraceus) can sometimes be found attached to a placenta following birth. In the past, this has not been considered important and knowledge of the so called ‘vanishing twin’ has been kept quiet so as to avoid triggering feelings of loss, grief or guilt in mothers.
However WP:COI states "Editing in an area in which you have professional or academic expertise is not, in itself, a conflict of interest. Using material you yourself have written or published is allowed within reason, but only if it is notable and conforms to the content policies." Looking at the work I see it's been referenced in other published works [3] [4] so I'm putting it back. --NeilN talk ♦ contribs 21:25, 24 March 2008 (UTC)
getting married with Cerebral palsy.. QUESTION?
my girl friend and i want to get married she has Cerebral palsy. and can not walk. she is in a wheel chair 100% of the time. i need to help her get dressed, go to the bathroom and shower. but every thing other then that she does well. should i be worried??? over time will it get worse?? will she have any pain?? or complications?? she also has a child and he is very healthy. she has a good job and has a very high IQ. more then anyone i know. also is college educated. she has no movement of her lower body when i help her to stand her legs cross but she has feeling threw out her hole body. as for making love it is very hard but we manage and the end result is all ways good. her balance is not good. and she has limited movement of her left side. a gen she does very well... to this day i still do not see the fact she has Cerebral palsy nor do i look at her like that at all. when i look at her all i see is a woman who has proven everyone wrong and keeps going no matter what anyone says. she is a great mother and provider and i love her to death. what do you think?? l.w.s. —Preceding unsigned comment added by 141.157.174.228 (talk) 00:14, 21 May 2008 (UTC)
- This is something one needs to look at no matter who they are marrying. ANYONE can have a stroke, an accident that renders them a quadriplegic, etc. Marriage is not a game of odds and should not be approached in terms of looking at it that way (e.g., "what are the odds of my girlfriend/boyfriend developing health problems in the future?"). I'm not dogging on you--you sound like a very caring person. What you need to ask yourself however, is whether you would be willing to stick it through with her no matter what happens. If there is any concern that there may be something that you can't deal with in the future, then you really need to think about that. My $0.02. Best of 'luck'. ;) —Preceding unsigned comment added by 67.42.233.16 (talk) 00:48, 6 September 2008 (UTC)
I have cerebral palsy i have a boyfriend he loves me and accepts me for who iam he says it don't boether him i wear braces on my feet. we had r 1st kiss ir was great i hope someday we get married. —Preceding unsigned comment added by 96.15.61.126 (talk) 03:40, 21 December 2009 (UTC)
Power Mobility
I am a PTA who is now in Durable Medical Equipment. I was surprised to not find one smidgen of discussion of the need for and the resulting rewards of the early intervention of independent power mobility. Taking my RESNA certification I was surprised but delighted that power mobility could be introduced at 18 months of age. I have recently been blessed to introduce power mobility to a child of 30 months. Yes, a 30 month old girl with spastic quadriplegia. She had been involved with Physical Therapy using a gait training system and moved best when no one was watching, so mom says. During the trial at her home mom walked beside and helped with probably fifty to seventy five percent of direction. But, when Mom stopped to talk to long she patted her on the thigh to get her attention and when Mom looked at she said, GGGooooo. From what research I have found if not given the chance at independent mobility some neural pathways never form. Could some mobility information be included?Dmgravely (talk) 00:51, 13 August 2008 (UTC)
percent causes
intro section. says 75% 15% and 5% what about the other 5%??? needs citations too. —Preceding unsigned comment added by 86.157.54.106 (talk) 19:13, 5 October 2008 (UTC)
Quality of life
I am a person with CP and am worried about how my life will progress as I get older. Moblity and social perception of me come to mind. My CP is not the most sevre, but is impossible to hide. I am younger too, and have no idea how I can get past people looking at me like I'm a freak, so I can try and find someone. A section on this would be greatly appreciated. I've looked and there is nothing here about what people can do about these problems. Any chance Wikipedians can find and add something to the page that adresses these issues? 74.127.210.48 (talk) 00:36, 16 November 2008 (UTC)
- Well, Wikipedia is supposed to include certain kinds of information, but not every possible piee of info. It is not many things, and a section you describe would likely violate at least one policy. With that said, if somebody can find sources that meet WP:V and WP:RS, then such a section could certainly be added. More personally, I work with disabled people, most of whom have severe cerebral palsy (and mental retardation). Regarding your mobility, get as much exercise as you are able to, including not just strength training or running, but also lots of stretching - your doctor should be able to give you some advice, though a physical therapist could be even more helpful. Social perception is a more thorny issue - there will probably always be some people who look at you like you're a freak, but then, some people act like that if you have a slightly larger than average nose. Try your best to ignore it, which I realize is mostly impossible. As far as meeting people (I'm assuming you're referring to romantic interests more than friends), I'd suggest not worrying about going out in order to meet new people; find clubs or others who have similar interests as you. Since these people have a reason to want to be around you, they'll get to know what you're really like, and you'll have something in common with any people you might have a romantic interest in. I suspect that, in truth, the vast majority of successful relationships in this world come from people who met while doing something other than the "single life" that the media promotes an awful lot. Do the things you enjoy, with others who enjoy the same things, and you'll meet someone special sooner or later. Trust me, I know many people who are far more physically disabled than you (and that's before we even get into the mental disabilities) who have lived into their 90s with fulfilling lives spent in the company of loved ones. 98.218.124.185 (talk) —Preceding undated comment added 11:32, 7 June 2009 (UTC).
Spastic CP name change?
Why is every case of spastic CP in the article changed to disabled? It didn't get officially changed to be called disabled CP, did it? Purplewowies (talk) 21:01, 17 November 2008 (UTC)
Promising stem cell research being done on CP
CP symptoms are being reversed by stem cell infusion treatments with umbilical cord blood samples. Considering this Wiki is probably one of the first places parents go when their kids have been diagnosed, I think the page should be updated to include information about the stem cell research being done. Read this: http://www.cnsfoundation.org/site/News2?page=NewsArticle&id=7331
Delerium2k (talk) 21:28, 23 November 2008 (UTC)
Un-famous famous people
Four of the people listed under "Famous People with cerebral palsy" are red-linked. They can't be that famous if we don't have even a stub for them. I am going to remove them from the list, but here they are if someone wants to do some research.
- Ben Comen, a cross country runner
- Michael Kutcher, Fraternal twin of actor Ashton Kutcher
- Charlotte Pierse, Sister of Sarah Pierse who starred in the movie Heavenly Creatures
- Lisa Dennis, Actress/poet and writer who lives in the Northeast of England.
Matt Deres 02:31, 29 January 2007 (UTC)
- That's absurd - I add folks and havent added a stub because I'm busy, give us a week between edits... Uppitycrip 22:34, 23 April 2007 (UTC)
Actually, it had said "Famous CASES" - so I changed that to PEOPLE! 207.161.212.85 (talk) 03:56, 18 April 2008 (UTC)
- Um... is "Jimmy Vulmer , fourth grader in TV series South Park" really something that should be listed in this section? —Preceding unsigned comment added by 69.181.192.79 (talk) 04:24, 13 June 2010 (UTC)
Classification
CP is divided into four major classifications to describe different movement impairments. These classifications also reflect the areas of the brain that are damaged. The four major classifications are:
Athetoid/Dyskinetic Ataxic
Mixed
One, two, four. How many are there, exactly? Steve Radant (talk) 00:40, 18 January 2009 (UTC)
Changing from cp spastic quadriplegia int floppy.
Can a child who suffered Cerebral Palsy since the age of 47 days and lived 10 years spastic quadri type with involuntary movements to be changed to floppy type of cp? —Preceding unsigned comment added by 213.152.75.253 (talk) 07:21, 3 February 2009 (UTC)
- I don't think this is possible, at least not normally. I guess stranger things have happened though. 98.218.124.185 (talk) —Preceding undated comment added 11:19, 7 June 2009 (UTC).
Image of hyperbaric oxygen chamber
Twice recently[5][6], an editor who has inserted File:HyperbaricDive Chamber 1.jpg into several other articles on medical conditions has also inserted it here. As can be seen from Cerebral palsy#Treatment, this therapy is not recommended for CP and inserting an image about it (while omitting images about other therapies) raises a serious WP:WEIGHT problem, making it appear that the Wikipedia article is recommending the therapy. Let's leave this image out; Wikipedia is not the place for promoting unproven therapies. Eubulides (talk) 23:13, 11 April 2009 (UTC)
Use of indefinite subject describing "Spastic quadriplegia"
This sentence is a little vague:
Spastic quadriplegia (all four limbs affected equally). People with spastic quadriplegia are the least likely to be able to walk, or if they can, to want to walk, because they are too tight and it is too much effort to do so
I assume the "they" (highlighted in bold) means the limbs but it would be better if someone who has better knowledge on the subject corrects it than I.
93.96.103.199 (talk) 16:05, 27 April 2009 (UTC)
Money
Money should not be brought into this article. —Preceding unsigned comment added by 217.43.14.14 (talk) 16:38, 25 August 2009 (UTC)
The red links in the See also section are based on the following....
--222.64.217.142 (talk) 09:38, 3 February 2010 (UTC)
- The see also section should contain links to existing articles. I'll drop some pointers on your talk page. Verbal chat 09:41, 3 February 2010 (UTC)
--222.64.217.142 (talk) 10:13, 3 February 2010 (UTC)
Universal pointers...???
- http://www.ingentaconnect.com/content/berg/anthroz/1998/00000011/00000001/art00005
- http://www.ingentaconnect.com/content/berg/anthroz/2007/00000020/00000002/art00008
- http://www.ingentaconnect.com/content/berg/anthroz/1993/00000006/00000001/art00004
- http://cpj.sagepub.com/cgi/content/abstract/49/1/7
--222.64.217.142 (talk) 10:05, 3 February 2010 (UTC)
dolphin sonar
--222.64.217.142 (talk) 10:10, 3 February 2010 (UTC)
--222.64.217.142 (talk) 10:11, 3 February 2010 (UTC)
--222.64.217.142 (talk) 10:19, 3 February 2010 (UTC)
Image
We could us a better image if some one would be so kind to take one.Doc James (talk · contribs · email) 22:37, 2 September 2010 (UTC)
such a major disability term deserves better attention
This article is very poor considering the subject it's dealing with. Not only are the citations weak and the language inconsistent, but also there are even some subtypes of CP that, when clicked, do not take the user to the cerebral palsy version of the disorder being discussed at all — for example, there is a fundamental difference between Tardive dyskinesia and dyskinetic cerebral palsy, and a section talking about dyskinetic CP should not be linking to the Tardive dyskinesia article. I tried correcting those misfire links by adding new article titles (for now still just redirects) to the appropriate terms, and I also added a section in the intro that tries to explain why CP as a whole is not within the "paralytic disorders" grouping. But I have a feeling I've only scratched the surface, if indeed I've done any important work at all. Overall, I really have a problem with the way this article is structured and "feels". I would hope, given how prevalent this disability category/umbrella term is worldwide, and thus how many are affected by it, that some responsible wikipedians would come through this page with an eye towards improvement soon. Kikodawgzzz (talk) 19:29, 1 October 2010 (UTC)
Stem cell treatment for cerebral palsy
Why isn't stem cell research mentioned anywhere in this CP topic? Treatment already exists at Tiantan Puhua Neurosurgical Hospital:
At least, it seems like it has some efficacy, so far. —Preceding unsigned comment added by 24.118.124.38 (talk) 04:35, 7 March 2011 (UTC)
- Thanks for bringinging it up. I never heard of it. I added a short description to the Other treatments section. Please edit if you have more or comprehensive information.Andru nl (talk) 14:48, 11 April 2011 (UTC)
Epidemiology incidence <-> prevalence
Hi everyone,
in the citated article of the "Thames Valley Children's Centre" it is talked about prevalence not about incidence! See the related articles for distinction. I know that the text says something about of 1000 live births but in my opinion its meant, that this is the basis of the data, which is calculated over the whole population.
Besides its nothing written about the timeframe you need for the incidence.
In my German neurology-book there is written an incidence of 9/100000 per year. This in combination with the prevalence of 2/1000 = 200/100000 makes kind of a sence.
Yours Dr. Vinzenz (talk) 00:39, 22 March 2012 (UTC)
Why isn't ABR (Advanced Biomechanical Rehabiliation) mentioned?
Another one to consider adding please is ABR (Advanced Biomechanical Rehabiliation) - it is having excellent results with families who are doing it with their children- please see www.abrcanada.com and www.blyum.com Fascinating stuff in my opinion with a different set of premises than mainstream therapies — Preceding unsigned comment added by Ceeceef (talk • contribs) 10:55, 11 July 2012 (UTC)
Issues
There have been a number of issues with recent edits:
- This "Global scientific consensus today still revolves around the idea that cerebral palsy is caused by various intensities and types of birth trauma or in-womb trauma." was added without a reference. It needs one.
- The image in the lead is being removed. This image has been in place a long time and this removal will require consensus.
- If people wish to add individuals to the list of notable cases these additions must include a ref.
Have reverted back to the last stable version. Doc James (talk · contribs · email) (if I write on your page reply on mine) 15:03, 9 September 2013 (UTC)
Reply —
- No justification exists on the Talk page or elsewhere for the image to have "been in place a long time". Users will have to point me and others to the relevant consensus where the original builders of this page decided to use a child to represent Cerebral Palsy.
- The scientific consensus is still that CP is "caused" by birth trauma, even though other research has proposed other causes, and other causes have been known to happen (they don't deviate too far from in-womb hypoxia though). I agree that a citation is needed, but I'm not necessarily responsible for adding one; someone else could do that with a simple Google search just as easily as I could.
- The article in general is enormously bulky, it reads like the hodgepodge of disconnected paragraphs that it in fact is, and the vast majority of it does not reflect the latest clinical research in to the various forms of CP. The article as it stands gives no indication that it has been vetted by medical professionals who specialize in CP, which is ridiculous given that for the CP main article to not have been vetted by CP professionals is akin to a Cancer article being neglected by cancer doctors, etc.
- This article needs an overhaul, and it needs attention from actual experts on the subject.
- This article needs a lot more people who have CP themselves, to come and edit it. I can't afford to keep being the only one, or the main one. Kikodawgzzz (talk) 15:13, 11 September 2013 (UTC)
- Yes the article has many issues and is thus rated a C. You are required to use high quality references just like everyone else however. We require the same of CP experts. Doc James (talk · contribs · email) (if I write on your page reply on mine) 15:46, 11 September 2013 (UTC)
RJ Mitte
I'm not sure how to edit on here (sorry) but I think that RJ Mitte who plays Walter Jr. on Breaking Bad should be added to the notable cases section. He has a Wikipedia page and there are many references in the media as to his condition. — Preceding unsigned comment added by 98.117.249.19 (talk) 15:12, 15 September 2013 (UTC)
Sourcing review
Some sourcing is problematic, working on fixing. Zad68
16:43, 22 January 2014 (UTC)
Sources table
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Possible copyvio problems
A lot of the text in this article, especially stuff that's unsourced, also appears at http://www.cerebralpalsyworld.com ... it's unclear which direction the text was copied. Zad68
21:23, 27 January 2014 (UTC)
- Cerebral palsy world is not really a reliable published source. They do not give refs. Which blocks of text are exactly the same? If it was added gradually to Wikipedia over time than likely they copying from us. Doc James (talk · contribs · email) (if I write on your page reply on mine) 00:09, 28 January 2014 (UTC)